Hi don,t cry

I had NHL back in 1997 (aged 56) with a tumour in the neck and was treated with Chemotherapy and Radiotherapy.

I was advised to exercise so I bought a bike & took up lawn bowls as well as a bit of golf.

Good Luck and be confident

Hi,

I've had NHL 3 yrs ago.

The chemo aint so bad, but i suppose it depends on which version you get, and which variant of NHL you have is a factor too.

I had CNOP (a version of CHOP) which wasnt so bad really. It did make me feel very very tired towards the last few sessions though, even gettin out of a chair was a struggle.

Watch out for infections/bugs whilst on the treatment too.....a minor 24 sickness bug which the kids shook off in a day put me in hospital for 10 days.

Good Luck and best wishes

Mark

From Lungho777

I have to stress that I did have a smooth ride with the Chemotherapy and Radiotherapy. I had spells of sickness and most of my hair did fall out quickly but I do not remember any pain. The exercise I mentioned was for after the treatment with the advice that it helped the return to normal health. I fully understand what you and your mum, especially, are going through 24 /7 but the success rates for NHL are very high.

I did not mention before but this year I was diagnosed with lung cancer (no link with my history of Lymphoma). On September 23rd I had a Bi-Lobectomy which is the removal of two lobes of the right lung. I am experiencing problems with my breathing when out walking (very slowly) but have a wonderful wife who looks after me amazingly.

I have every confidence in the NHS that I am going to be OK and I feel the same for your mum so please send her my spiritual support and for you, be strong and confident, you will both be OK.

hi there,

my name is jeff i am 53 and was diagnosed with chronic lymphocytic luekaemia,which is a form of non hodgkins lymphoma,on the 5th of july this year and i seem to be on the verge of chemotherapy but have been led to believe that it should not be to bad, but like they say it affects everyone in different ways,so i live in hope that if i do have to have chemo then things will not be to bad,but i will deal with that if and when it comes along,i will find out on friday the 5th nov 2010 if i need chemo.

what kind of nhl does ya mum have,and how did she manage after it, as for advice the only thing i can say is try to remain positive,i know it is not allways positive butit does help,also keep comihg on this site and i am sure you will get plenty good advice and support in the future so take care,keep ya chin up and give ya mum plenty love and cuddles to help her along the way.

jeff. alias(dad1929) in memory of my late dad who died 29 jan 2000 allways in my heart.

Hi,

I've had follicular NHL for 18 years (I'm now 58) and have just finished 6 sessions of r-CHOP. Overall, I wasn't affected too much but it all depends on the regimen, the person and the type of NHL. Over the period I became uncharacteristically needy interspersed with certain periods when I didn't want to speak to anyone! So with your Mum, just be aware and observant and give her the attention she wants when she wants it and don't feel rejected when she gets grumpy with you.

Richard

I myself have been diagnosed with lymphoma  and had chemo. I can share my experiences  and advice if you are willing to contunue our discussion.

Regads,

Ramana

10.11.2010

Hi,  I started my treatment early june/2010 every 2 weeks for 3 months.  It was chop-r chemo, and NHL in the bowel, so I guess the location may have a bearing on severity of how things affect your body.  The last treatment was in mid August, and I still have side effects, the worst being my heart efficiency is down to 40% which I found this out a few days ago and have to see a boffin on thursday.  Going through the weeks from the start it did get worse for me, had all sorts of body problems, down to not being able to think properly.  Problems which there were many, tiredness, hiccups, drymouth, sore gums/teeth, hair loss, voice loss at times, bloating, no energy to walk, loss of balance also nuero-opathy in hands and feet ( like pins and needles ) thats what I can recall, but the last couple of treatments seemed worse as if a build up in your body from previous weeks.  Prior to this I had no idea about cancer, but I was having treatment at a day clinic and going home at the end of the day which was good, but I have the utmost respect and admiration for the nurses who looked after me, and gave me information and advice which was so helpfull to me, having little knowledge.  It's not easy having the treatment, but lets hope for your mother she can cope, lets face it, the chemo is attacking your whole body as its whizzing around your system.  Best of luck, I am in remission so good news is out their.  skippy.

Thankyou for your reply, it means alot to know there are some people out there that understand what im going on about!

My mum starts her 3rd round on wednesday as long as her bloods are all ok, she has lost most of her hair which she is struggling to deal with and is struggling with pins and needles in her fingers!

Everytime she starts another round of chemo it brings it all back to the surface and i struggle to deal with it all, all over again! My hubby is trying to help me cope but all he can say is " everything will be ok" and its beginning to bug me, im not silly i know it might not be all ok!

Hi

My daughters friends mum had lymphoma 8-10 years ago, she had a lump in her neck and thought she had caught mumps from her grandchildren. She had the chemo, lost all her hair and is still well and free from cancer.

About my cancer my husband also says it'll be alright, I think it because they want it to be alright and don't know what else to say they just see how much you are hurting, I asked him to stop saying it because it doesnt help me and he did. He still doesnt know what to say but he listens and hugs me.

looking after your mum will drain your energy so remeber to take care of yourself as well

Chris

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