Dear Kathym,

I have nt the same symptoms as you as i have breast cancer but i just wanted to wish you well.Y.ou have had a horrible time.Things tend to get better when you start treatment and know where you are heading.

Stay in touch here as many lovely people will give you help and support.Good luck.

Rose xx

Hi Rose,

Thank you so much for your reply. I am so sorry you have breast cancer. Cancer is such a devastating disease. I am so worried about the chemo, its just because I don't know what to expect. I have already bought a wig and sent for some false eye lashes!. I hope you are coping well. There are some lovely people on the site who have gone through a lot of heart ache. I am so pleased I have found the site. Thank you once again.

Kathym xxx

Hi Kathym, I am new to this site, but wanted to share my experiences of a Borderline Ovarian tumour. I'm so sorry to hear of your problems and that you have had to have chemotherapy, you have been through so much and have been so brave.

Here is a little of my history.

I was diagnosed with IBS in 2006 after an upper abdomen scan showed nothing untoward, the gastroenteroligist felt this was the only answer because of my symptoms. Bloating, diarrhea, and constant peeing and stress and some pain. For 2 years I was treated for IBS by my GP with peppermint oil tablets, mebeverine, and watching what I ate, nothing seemed to help and I returned to the doctors almost every 3 months. By Christmas 2007 my tummy was now huge, very uncomfortable, and my symptoms had worsened, I was struggling to walk even short distances, drive the car, and could not lay on my tummy or my back in bed, I was very uncomfortable and suffering shortness of breathe. This was all very gradual and didn't happen overnight. I went back to the doctors again in the New Year, my doctor had retired and I saw a lady doctor, after a examining my tummy she decided I should go for another scan. I was found to have a huge ovarian tumour and was fast tracked to have a CT scan and referred to a Gynae Oncologist on removal it was found to be 30cm in size and weighed in at a hefty 20lbs, it was jammed up under my ribs and pressing on all my major organs! It was found the have rare cells and a biopsy was sent to the renowned Ovarian Cancer Hospital in Boston, who agreed with my specialists that it was a rare borderline ovarian tumour. I had a full hysterectomy, omentectomy, and cystectomy and lost 26lbs on the operating table. It was felt that the cells were all contained within the tumour and that I would not have to have chemo/radiotherapy.

I know I was very lucky, and so far I have been well, I was told I would not need followups and I was just told to listen to my body. But the more I read about Borderline tumours the more I worry that it could reappear.

Kathym your story is the first I have read where it had reappeared, and I wondered what other symptoms you noticed apart from the bloating if any?

I have all the same as you ladies.. I had full hysterectomy and oopherectomy plus borderline HUGE TUMOUR removed on April 16th 2019..I went for my follow up on the 16th july 2019.. at my follow up my gyne oncologist said I had a borderline ovarian tumour and would need to have regular checks for a few years to come but he didn't think chemo or further treatment was needed.. since my operation as weeks and months have gone by I have started to notice all the symptoms I had before surgery re occurring.. I am extremely nauseous from the second I open my eyes till going to sleep and anti sickness tablets only relieve it a tiny bit..I am due to go for another appointment to see my gyne oncologist on 23rd October 2019 due to needing checks every few months for number of years.. I am worried as I know that it is possible for re-occurrence.. all my symptoms are the same as before.. has anyone else been through this or had the same sort of thing..all av done is worry since my first appointment in January 2019 and I have worried ever since.. I am on hrt prognova and I have been in this for two months as the patches wasn't working due to them just not sticking.. any info I would appreciate.. 

kind regards amanda xx

Hi Amanda

I am new to this site.  I am 65yrs i have back pelvis pain since Jan 2019 which travelled to my left groin which the lymph nodes are swollen and painful to touch the pain travels to under my tummy and i get pain in the rib cage this they say is fluid on the lung. And a mass in the pelvic area and enlarged ovary.

Results from Ultrasound and CT Scan now waiting for biopsy.  Worrying time as no one knows where the fluid is coming from and i have put on over a stone in one month which is fluid. 

I find it very difficult to walk, bend down etc.  I am now taking Zoramorph and Oramorph with paracetomol to help control the pain.  I am not sure what the next step is and is a very worrying time for us all.  It saddens me to hear you still have problems with swollen stomach .  Do they know why this is?

I found it really helpful to list all my questions to get direct answers. 

I feel extremely sick all day long so only have soup but this is the side effect of morphine.