One week from diagnosis to death!

Hi there

I am writing this and I am not sure why. I think I am still shell shocked at the speed of what has happened. My mum had been feeling tired for a few months and the GP had put it down to her needing to increase her diabetes tablets which was done but made no difference. Blood tests at the begining of July said that her Potassium levels were low and she was put on tablets to increase this. A further blood test said that her iron levels were low so she was put on iron tablets. On Wednesdayt the 22nd of July she woke up at 5 am very breathless, an ambulance was called and she was admitted to hospital, she had more blood taken and a chest x-ray and CT was done, something showed up on the x-ray and CT and that she would need a bronchoscopy which was done on Thursday 23rd July. She was told on the Monday 27th July that she needed another bronchoscopy and that it was nothing that couldnt be fixed, this was due to be done on the Tuesday 28th July. This had to cancelled as the doctor had an emergency to deal with on the Tuesday so it was scheduled for the Wednesday 29th of July. This time it went ahead and on the Thursday my mum was given the results with my brother and niece present, I lived 60 miles away so my niece phoned my and told the bad news, my mum had lung and stomach cancer and there was nothing they could do to help her, it was terminal and that she didnt have long to live, she was only 66 years old and was such a strong, independent woman even though she had other medical conditions she wouldnt give in to. I went to be with my mum on

Friday 31st of July, she was started on morphine as the pain in her chest had got worse. that weekend she was given blood transfusion as the tumour in her stomach was bleeding she was also started on a tablet that would stop this bleeding. She was on a general medical ward and was getting very aggitated at the noise in the ward, so we spoke to the consultant in Pallative care and she said she would arrange a side room which was better for mum she wasnt quite so aggitated. Over that weekend the doctors said mum had had a stroke as her left side was very weak and she couldnt hold her own weight and needed two nurses to help her go to the toilet. Her face had also swollen up as they said one of the arteries taking the blood from the head was blocked and that was why her face was swollen, she was given steroids to try and ease this otherwise she would have had to go to a hospital in Edinburgh for a CT scan and a stent put in but she wasnt strong enough. Mum said she had a lot of pain in her abdomin/heart and the doctors werent sure if it was the tumour in her stomach or if she had a heart attack. During all this mum was saying she wanted to go home but we all knew that she needed a lot of specialist care and that she would never be able to come home. Mum was moved to the hospital Hospice on Monday the 3rd of August and passed away on Thursday 6th of August and I am totally lost, heart broken, lonely and devastated, within a week had lost my mum and my best friend. I am shell shocked at the speed of this I know its only been 10 days since she passed away but I still cant believe it.

Liz x

Parents
  • We've had a rough few months. My dad was diagnosed with stage 4 lung cancer at the beginning of November. They're treating him with chemotherapy and immunotherapy, and all signs look good at the moment. He's not curable but hopefully containable and manageable. Here's the shocker, mum had a knee replacement in July, and had a few complications so sent for an endoscopy, all looking good. Since got diagnosed with type 2 diabetes mid November and sent for abdominal scans at a local hospital, all looking good and got her diabetes under control with her diet really quickly. 2nd December she came to my house to use our WiFi (daft mum couldn't work hers at home!) and I thought she looked awful bloated and she said she was going to make a doctor's appointment then that afternoon and called them from my house. They said she needed to get up to hospital asap and got an ambulance for her as they felt that much fluid on her abdomen could be very dangerous. So she went up on the 2nd, on the 7th they told us it was terminal liver cancer and had spread to her lungs and stomach, and on the 20th December I held her hand as she passed away. I don't know what the hell happened. She had so many tests and scans before hand, how wasn't it picked up? Tomorrow will be a month since we lost her. I know she's still with me though. But I miss her. 

Reply
  • We've had a rough few months. My dad was diagnosed with stage 4 lung cancer at the beginning of November. They're treating him with chemotherapy and immunotherapy, and all signs look good at the moment. He's not curable but hopefully containable and manageable. Here's the shocker, mum had a knee replacement in July, and had a few complications so sent for an endoscopy, all looking good. Since got diagnosed with type 2 diabetes mid November and sent for abdominal scans at a local hospital, all looking good and got her diabetes under control with her diet really quickly. 2nd December she came to my house to use our WiFi (daft mum couldn't work hers at home!) and I thought she looked awful bloated and she said she was going to make a doctor's appointment then that afternoon and called them from my house. They said she needed to get up to hospital asap and got an ambulance for her as they felt that much fluid on her abdomen could be very dangerous. So she went up on the 2nd, on the 7th they told us it was terminal liver cancer and had spread to her lungs and stomach, and on the 20th December I held her hand as she passed away. I don't know what the hell happened. She had so many tests and scans before hand, how wasn't it picked up? Tomorrow will be a month since we lost her. I know she's still with me though. But I miss her. 

Children
  • Hi Traceylynn

    You seem to have been through a really tough time recently. It's so difficult to except that they are gone and why it wasnt found in time. I still miss my mum and it has been 10 years now, I guess when I first lost her it was my first experience of cancer. I always assumed my mum with go with a heart problem as that is the usual cause of death in our family.

    I just wanted to say hi and if you need to bend an ear I am here for you.

    Best wishes

    Liz