Declining chemotherapy for stage 4 lung cancer

Hi all

I was diagnosed with stage 3 lung cancer this time last year and had the two lower lobes of my right lung removed in January of this year.  I was offered chemotherapy afterwards, but the oncologist said that chemotherapy for my type of cancer would only increase my chance of 5-year survival by 5-10%.  She didn't advise me one way or the other, which I was happy with. I declined treatment at the time.  A 6-month follow up scan in October showed patches in both lungs, which resulted in a biopsy a forthnight ago.  Last week the Respiratory consultant told me that the biopsy confirmed that the cancer had returned and spread to the left lung.  Due to the diffuse pattern of the cancer, surgery is not an option.  He said that he will ask the oncologist to contact me to discuss chemotherapy. I expect to hear from him in the next few days.

I will have questions for him, but my feeling at the moment is that I would prefer to not have have chemotherapy and try to live as comfortably as possible for however long I have left.  I hope that I do not upset anyone who is having chemo, as I completely understand that it makes sense to try treat cancer with whatever tools the doctors have to hand.  I just wondered if anyone with lung cancer had declined chemo and what their experience is.  We are all different and I will make a decision after having a frank discussion with the oncologist.

Thanks in advance for any comments, Bluette

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  • Hi Bluette,

    I am 67 years old and was diagnosed with stage 4 lung cancer about 15 months ago. Although only in my right lung apparently it had spread to the pleura. Because of severe COPD i could not have surgery to remove the tumour and in any case it was multifocal. I declined chemotherapy and believe that I made the right decision. I chose quality of life over quantity. I am still active and working and apart from increasing breathlessness and a few aches and pains I am symptom free. I walk for about an hour every day and keep busy with work and seeing or talking on the phone to friends. I believe my life would have been almost unbearable had I chosen chemo and I am glad I declined it. I am still going strong but know things will get worse. For me the dubious  benefits of chemo were not worth the suffering it entails so I made my choice. Each of us must make their own choice and we all are different and have differing situations etc. Good luck in your choice! John x

  • Hi John

    Thanks for your message.  I am pleased to hear that you are doing well.  After I last posted at the beginning of December, I saw the oncologist who gave me a prognosis of 18 months to two years if I had chemo and about a year if I declined it.  I was happy to accept what nature had in store for me, choosing quality over quantity of life - chemo would only give me an extra year anyway.  I asked the doctor what he thought the point of chemo was in a case like mine and he said to try and stop the cancer spreading to the bones and brain.  I asked him a blunt question and he gave me a blunt answer!  I realise that chemo may not prevent the spread to those areas, but felt more inclined to accept a treatment which might make my life more comfortable.  

    I had my first chemo infusion on 9 February and haven't experienced any side effects so far, apart from feeling a bit irritable from the steroids which I had to take for a few days.  It's quite possible that the chemo isn't particularly effective, as I'm still coughing a lot.  However, the side effects which I feared just haven't appeared so far.  This might be because I'm receiving palliative chemo rather than curative chemo, so maybe the dose is quite low. I think the oncologist is going to prescribe a codeine linctus for my cough.  

    I suppose on balance I am pleased that I have opted for chemo, as while my main symptom of coughing hasn't improved yet, it may be that it delays the spread of the cancer.  At least I don't feel any worse, which is what I feared about accepting chemo.  

    My experience hasn't changed my opinion about treatment. I still feel that we are all different and have to make choices that suit our individual circumstances.  I have been pleasantly surprised that I haven't suffered side effects, but I respect each person's choice regarding their own body.

Reply
  • Hi John

    Thanks for your message.  I am pleased to hear that you are doing well.  After I last posted at the beginning of December, I saw the oncologist who gave me a prognosis of 18 months to two years if I had chemo and about a year if I declined it.  I was happy to accept what nature had in store for me, choosing quality over quantity of life - chemo would only give me an extra year anyway.  I asked the doctor what he thought the point of chemo was in a case like mine and he said to try and stop the cancer spreading to the bones and brain.  I asked him a blunt question and he gave me a blunt answer!  I realise that chemo may not prevent the spread to those areas, but felt more inclined to accept a treatment which might make my life more comfortable.  

    I had my first chemo infusion on 9 February and haven't experienced any side effects so far, apart from feeling a bit irritable from the steroids which I had to take for a few days.  It's quite possible that the chemo isn't particularly effective, as I'm still coughing a lot.  However, the side effects which I feared just haven't appeared so far.  This might be because I'm receiving palliative chemo rather than curative chemo, so maybe the dose is quite low. I think the oncologist is going to prescribe a codeine linctus for my cough.  

    I suppose on balance I am pleased that I have opted for chemo, as while my main symptom of coughing hasn't improved yet, it may be that it delays the spread of the cancer.  At least I don't feel any worse, which is what I feared about accepting chemo.  

    My experience hasn't changed my opinion about treatment. I still feel that we are all different and have to make choices that suit our individual circumstances.  I have been pleasantly surprised that I haven't suffered side effects, but I respect each person's choice regarding their own body.

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