Unusual

My path has been strange I would love to hear from someone with similar experience . I was diagnosed 2020 with advanced stage 3c her 2 positive er and or positive had chemo didn't work surgury April and put on TDM1 august 2021 but radiotherapy didn't start till November six months after surgury oncologist so good but I feel like they don't know exactly what to do ..know I had a lot of cancer in nodes including supraclavicular I had 21 out of 22 axillary cancerous and they classed me as metastic but any metatastic forums are liver r bones etc I feel I'm in no mans land does that make sense 

  • Hi Oldblueeyes, 

    I'm sorry you've been having difficulty connecting with others with the same diagnosis.

    Hopefully some of our members who are on the same journey as yourself will be along soon to share their experiences and advice but if you'd like to talk things through with one of our cancer nurses at any point then you're welcome to give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    You may also be able to find others with a similar experience on Breast Cancer Now.

    Kind regards,

    Steph, Cancer Chat Moderator