Mycosis Fungoides (MF) progression throughout the years?

Hi everyone,

 

I have been diagnosed with MF almost a year ago now but had been having a rash in my back for a few additional years.

Over the course of this year I've developped new patches under my armpits and my upper thighs and I was wondering what the average progression rate was, and if some of you could share their experience living with MF and how it progressed - to get a better idea of what the doctors mean by "indolent".

I was diagnosed at stage 1A and I understand that it's not a fulgurant cancer but I am 25 and it progressed quite rapidly this year vs the first 5 years I had the disease, so I am not sure what to expect in the many years to come. 

 

Many thanks for those of you who take the time to share their experience - it is truly helpful!

  • Welcome to Cancer Chat Lea.dsh although I'm sorry about the new patches that have appeared and for the worry they're causing.

    I can see you've connected with some of our members with MF on another discussion which is great as they are very informative and will do all they can to help but if you'd like to talk things through with one of our cancer nurses then do feel free to give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    You may also be able to get further information, support and advice from the Cutaneous Lymphoma Foundation and Lymphoma Action.

    Kind regards,

    Steph, Cancer Chat Moderator