Post cancer woes

Hi all,  am 12 months post nepherectomy/8 weeks post chemo for a high grade kidney cancer.  Fatigue and chemo brain still a problem but overall physical health on the up.  Feeling bad mentally however, waking up in the middle of the night with anxiety symptoms such as butterflies and a sense of fear.  Also feeling depressed.    Have a history of depression and already on anti depressants but this much worse than before.   Have had to come off my diabetes drugs as they were building up in my remaining kidney and the function fell very low.  Am no longer having any support from the hospital and hard to get hold of gp or diabetes nurse.  I was promised a blood test after 12 weeks to check how my diabetes levels were doing and to discuss if other drugs were needed but they have suspended 'routine tests' due to a shortage of vials for testing.  I am also asthmatic and am still concerned re covid had vaccinations during chemo - I understand there will be a 3rd injection but of course in my anxious state this is no comfort at present.  Have phoned for a gp appoint to discuss this and have been offered a telephone appt in 2 weeks......    

tbh honest just feel like I am drowning and there is no life belt right now.  I feelinside that things will be ok I have some other serious health problems in the past and came out the other end but the uncertainty of a high grade cancer means my positive front feels like a farce, lost my sister to cancer 3 years ago too.

I will be seeking further support but needed to put all this out there to see how others cope

  • Hello Gilly-lavender,

    I'm sorry to hear you're feeling this way but there is support out there. I hope your upcoming appointments go ok and don't be afraid to ask questions to make sure all your concerns are addressed. There are some tips here to chemotherapy side effects and mindfulness can help you calm your thoughts and boost your mental health. The forum is always here if you need it and you can find other support here.

    I hope this helps and all the best,

    Moderator Anastasia

  • Hi [@Gilly-lavender]‍ 

    I'm sorry that your post has remained unanswered for all these days, I know how supportive this forum can be, I also know sometimes it is nice to just have a place to write down what you are feeling.

    I know the drowning feeling, you just wonder what else are they going to throw at you and why!

    Night times are the worse for me too, I dread it, I dread not being able to sleep and lying there for hours with my mind whirring, I dread going to sleep and having bad vivid dreams waking up in sweats and in pain.I dread the hours ahead of me.

    These days you do not need a Doctors referral to the mental health team, so you might be able to talk to them direct, I know in my area, you can just phone the clinic and talk to someone who can then arrange further help. Although again in my area they are so busy and understaffed that you still have to wait. I get a scheduled call every month to two months, but I had some set up that then never happened because ???? I don't know why, she may have left, she may have forgotten the appointments, who knows It was never explained to me.

    Even though I was supposed to be on the shielded list, my friend was also on the shielded list, and we were our own little bubble, and I was his support, so through this last year and more, I have continued to go and do the food shop for my house as well as his. He has had both vaccines and now his booster, but his immune sytem is compromised, so he is still too scared to go out, he has just had to go to the hospital himself and we are waiting to find out if he has Colon Cancer, he absolutely hated going to the one place where he feared he could catch Covid most. I have told him, cancer is supposed to be 1 in 2 people, he is not allowed it, I am the 1.

    It takes a long time to start feeling like you have got through this and for me anyway the nagging in your head reamins, it's like your always waiting for the next thing to happen....

    I am here if you want to chat or vent.

    K