Docetaxel and Phesgo- burning rash and repeated sepsis

Has anyone else experienced a burning rash on hands feet and face with this combo? 
rash started on hands then my feet and no it's taking over my face. I kept showing my nurses and doctors for weeks and they didn't know what the rash was now it's aggressively attacking my face they seem to think I'm having a reaction to these two drugs combined. While I wait for the extra antihistamines to kick in to see if they are corrrect I can't help but feel frustrated that I was pointing this out weeks ago before my second dose and nobody listened until it got horrifically worse. Besides that after two doses of this combo I've been kicked into sepsis each time and had to rush to a and e. Staring to feel like my oncology team is playing Russian roulette with my life and I still have two doses of this dreaded combo left? Am I alone in feeling this way? 

  • Thank you. I rang the hospital ward this morning they're adamant it won't be the chemo. My cancer has spread to liver too they suggested it might be this and to contact doctor for liver test which I've done and asked for steroids. My consultant didn't call last week and didn't arrange another appointment. There is lots I want to know such as what stage it's at, how long roughly I have left. I live alone, no family I lost my sister 2 months ago with pancreatic cancer diagnosed and dead within about 5 weeks. 

  • I'm so sorry to hear that and hope you get more information soon sometimes the not knowing is worse. Do you have a Maggies centre or Macmillan nurse you can talk to? I know Maggies have counselling etc take any help you can to get you through. Have you any friends you can talk to about your worries? 
    sorry for your loss I can't imagine how that must have felt. 
    keep pushing them you are entitled to answers and care and it can't go on like this. 
    Keep messaging on this thread and keep me updated we are all going through this horrible thing together. Sometimes I think the doctors don't see us they just see statistics and treatment and that's the hardest thing. 
    I'm on day 2 of steroids I'm still weak but they've given me a boost and the rash is burning less. I've managed to get a dermatologist consult this week too so fingers crossed someone knows what this is or how to treat it although my team seem convinced it is the chemo I'm reacting to as the timeline makes sense. 
    hope you hear something soon until then keep talking and keep on hassling those consultants for answers it's your right.