Letrozole

When my mom was diagnosed with breast cancer her tumour was so large, penetrating the skin and was fungating because she had kept it to herself and not reached out for medical help for eight years. She was put on letrozole and over time the drainage stopped and the tumour shrink in size. Fast forward 2 1/2 years and she is in incredible pain - we’ve put in calls to GP, breast care nurses and consultant.
I am considering telling her to stop taking the letrozole for now and just see what happens - he case is a little different as he tumour was never removed so it’s inevitable it would grow back over time, but I wonder how long and surely if the drainage started again she can hop back on the letrozole and it will dry it up again. When she was diagnosed the consultant said her breast cancer is not a type that spreads so I don’t think we would have concerns over spreading.
I just feel right now she has the most awful life, she has become housebound with the pain, not dressing, washing or feeding herself properly. There could be other issue in addition to this but I’m really thinking to get any quality of life back stopping the medication would be sensible because as it stands her life isn’t one worth living as awful as that sounds.
What are your thoughts?

  • Hello Nitnatc,

    I'm sorry to hear about your mum and how she's been affected by this. It's important that you and your mum speak to her medical team before making any decisions as they will be the best to advice you. Letrozole has some side effects and there is more information and tips here that might help your mum feel more comfortable. If you need to speak to someone, we have a team of cancer nurses available on the freephone 0808 800 4040. Lines are open from Monday to Friday between 9am and 5pm.

    Best wishes to you both,

    Moderator Anastasia

  • Thank you - my mom has now made the decision to have a break from the medication because of the debilitating effect it's currently having on her life. All the calls are out for blood tests and consultations but for now she also feels she needs to see how things change with not taking the letrozole.

     

    thanks for your reply.