Chat to others with triple negative Spindle Cell Breast Ca

Hi, I was diagnosed grade 3 Metablastic TN Spindle Cell carcinoma of the breast in June 2021 and in my 2nd cycle of chemo post mastectomy.Having been told this was rare I have not been able to talk to anyone else and google is not always the best source of information. If anyone is willing to share and chat that would  great.:happy:

  • HI

    I have found a lump in my breast and I am waiting for pathology, the interim result is SPindle Cell prolifiration B3.  

    I have been told it has to be removed but I am waiting on a call back from the Dr the pathology is taking forever it's like torture!

    I hope you are ok the spindle cell info is very poor and I have struggled to find anyone who has info on it.

     

  • Hello,

    Welcome to Cancer Chat. I hope you'll be able to connect with members in a similar situation. There are some tips here for coping with chemotherapy side effects, which you might find useful. Our cancer nurses are also available should you need any medical advice. You can call them on the freephone 0808 800 4040. Lines are open from Monday to Friday between 9am and 5pm.

    Best wishes to you,

    Moderator Anastasia

  • Hi

    Sorry i havent replied earlier. I hope you are ok and have heard back from the Dr. regarding the pathology. I have been keeping my fingers crossed for you that it comes back as benign and that thay give you a plan. 

    Like you i have foung it very diffcult to find any reliable info on Spindle cell but will keep looking and will keep you informed if i find out anything relevant.

    Keep strong.

    Thinking of you :

  • Hi

    I still don't have my pathology back I'm told I will have a call on Monday as again it wasn't complete last week.  I've been booked in to have the ump removed on 3rd Sept but it may change dependant on thr pathology.  
     

    I can't find anything that makes me feel positive about this at all

  • Hi ,

    Will be thinking of you on the 3rd. First step will be done and you will be able to start to look forward. Fingers crossed for pathology.

    I have my third round of chemo on the 2nd September.

    Take care and try to keep positive. I have found it usefull to plan something enjoyable to aim for even if it is just coffee and cake with friends next week. It gives me a positive focus. Daft but it helps.