Oncotype score of 18 - What to do re chemo!

Hey Everyone

I had a phone call from my oncolgist this morning. My Onco test has come back with a score of 18. He said that his advice would be that chemo would not be necessary. It would only be of 1.5% benificial with regards to future reoccurance. Therefore the potential negative effects of chemo are outweighed by the low score. However... The final decision is up to me. First big decision I have had to make! 

 

I've had a lympectomy with clear margins. No trace in my lymph nodes. Grade 3. Hormone +. HER2 -.

 

I will definitely be having a course of radiotherapy and will be taking hormone tablets. Oncologist has said that my main defence against reocuurance will be the hormone treatment.

 

I feel in a real quandary today :(. Oncolosist said he was really pleased with my result. I have another appointment with him on 19th and definitely think I need to ask a few more questions. I still feel very in-the-dark about the likelihood of reoccurance ect. Plus I am a worrier! Will I continuoulsy be fearful if I don't have chemo?!?! I had geared myself up for the fact that I would be needing it, But in the same breath am I considering putting my body through great trauma unnecessarily! 

Any thoughts and advice would be greatly appreciated from you amazing bunch of warriors! 

 

Sarah xxxx

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  • Hi I was in the same situation 2 1/2 years ago . I decided against chemo after weighing up the pros and cons. 1.5% wasn’t enough for me to put myself and my family through chemo and possibly life long side effects. The numbers just didn’t add up . I think it’s always in the back of your mind if you made the right decision but for me I feel it was and don’t dwell on it. Who is to say my cancer wouldn’t return with the chemo. I also thought if my oncologist thought it was what was needed she would have said . It’s a tough decision , I wish you well with whatever you decide. Best wishes nicky 

  • Hi Nicky

    Thank you so much for responding. This is the toughest decision I have been faced with so far in life. 
     

    I'm still undecided. There are a couple of key questions I have for oncologist. But I do realise, like you said, that 1.5% is so low. And that the long term effects of chemo could leave me in a worse position! 
     

    Reading your reply has really helped. Thank you again for taking the time. Could I just ask how old you are? I am due to turn 49 in September xxx 

Reply
  • Hi Nicky

    Thank you so much for responding. This is the toughest decision I have been faced with so far in life. 
     

    I'm still undecided. There are a couple of key questions I have for oncologist. But I do realise, like you said, that 1.5% is so low. And that the long term effects of chemo could leave me in a worse position! 
     

    Reading your reply has really helped. Thank you again for taking the time. Could I just ask how old you are? I am due to turn 49 in September xxx 

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