Hi, I have just started weekly paclitaxol. Had the first one last Wednesday....all gone ok, didn't feel poorly, apart from a rash today, so I'm going to have that checked out tomorrow.  I was told weekly is tolerated better and not as strong as EC. I'm having Phesgo injection every 3 weeks too (for Her2+)

Hi I am due to start in 22nd July as away in Brighton next week. Am having weekly injections so will keep you updated an vice Versa. Good thoughts to us all out there 

Hi Nell07 thanks for your reply yes I will be the same with the injection also. I'm glad your first one has gone well I was hoping that might be the case with it being smaller doses but I wasn't sure. Have you had EC as well? I have my last EC at the end of the month and then changes to the taxol. Did you get a 3 week break inbetween you finishing EC and starting taxol? Thanks Lizzy xx

Good luck  I hope all goes well yes please keep me updated xx

Hi Lizzy79, No I haven't had EC, because I had chemo for a different type of cancer 33 years ago, so I couldn't have it.  I have had a double mastectomy 6 weeks ago.  Again some of that is because my breast cancer maybe caused by the radiotherapy I had 33 years ago. So I just wanted both my boobs removing, for my peace of mind. I have been high risk for a few years because of the earlier treatment and I was sick of worrying about it.  My BC is early stage, no lymph node involvement, but Her2+  so I need to have chemo because I need the Phesgo for the Her2+. I have had a picc line fitted which is great and made getting the paclitaxol easier.  I have had anti histamine since the chemo to help with the rash, I also got a red face and chest foe a few days...nothing terrible and felt well.

My daughter is a Chemotherapy nurse so she has been helpful with advice.

was the EC tough? My chemo 33 years ago was tough going and I used to be so sick paclitaxol has been so  easy in comparison. I think it gets some more side effects eg fatigue, as we have it weekly but nothing terrible.

good luck with your last EC x

Good thought to you to and to all of us...we are warriors

I haven't been too bad from the EC, I've got my last lot of it later on this month and it's the tiredness that's got me so far I've had a sore mouth for the first two but it hasn't been a problem this time round and obviously the hair loss is a big bummer and I find the hardest not in a vain way but I'm 31 and I don't want to leave the house because of it. I was hoping as it's a more diluted drug or less of it? That the side effects may not be as bad but worry they will get worse as it goes on I will be having it from august until November weekly without a break :cry: Then a mastectomy which is also a scary thought but if it works it works ey x

Sorry I thought I'd replied to you?! 
yes I will lose my hair in a few weeks with the paclitaxol, I'm dreading it...I have bought some nice beanie hats and someone has given me some scarves to try. There is a helpful Instagram group called 'head wrappers' who show you how to wear a head scarf.

I'm also being fitted for a wig, but I think I'll be too hot when I will wear it. I am not sure how confident I'll feel wearing it.  I've been watching some good YouTube tutorials on how to draw eyebrows and wear eyeshadow for eyelashes. It's a big thing to lose our hair. I think that's why I'm preparing as much as I can for it, but I know for me it' feels harder than having the mastectomy?!

I do think weekly paclitaxol is a much more gentle chemo regime than the EC. My daughter told me that, when I was waiting to find out what they would give me for my chemo treatment regime.  
I have got a rash on my neck and a bit of my face from the first one...but I'm hyper sensitive to medication. I did cry with the nurse today as I was being given my 2nd chemo, that I'd lost my boobs, now hair and to get spots was the last straw! Hopefully the spots won't get worse after my second dose. I'm having stuff to try and stop it.  
just to say the mastectomy has not been not too bad! The build up was worse. The relief they cut the cancer away was good. My surgeon has done a fab job...are you having a single or double mastectomy? Reconstruction or staying flat? 
yes we are very brave women, doing what we can... but we can do it x

Hey how did the taxol go mine starts soon and im freaking out x

@Lizzy79,hi i remember myself before i started weekly Paclitaxel... now iam four weeks after I finished my chemotherapy. I can tell you with confidence it's not so scary as you think but I understand you as i was the same. Very little side effects, every week blood test covid test and treatment, very busy life for 12 weeks. Wish you to be strong ! X