Have been on Sutent now for 18 months

Hi everyone. I've been on Sutent now for 18 months. I'm aware I've entered the zone where I could be told it's not working any more. Sorry if this is an insensitive question, but do symptoms change as it's stopping working? (I have 2 spine mets. I do the 37.5mg course and have been fairly pain free. Also, if I get news that I have to try a second line treatment, is it likely to fail more quickly than the sutent? 

  • Hello Alastair, 

    A big welcome to Cancer Chat. I noticed that you posted a couple of days ago in an old thread from 2015 and as you might not get any replies for that reason, I thought I would branch your post so that it now stands as its own thread and gets more visibility. I hope that you will hear from other members who have been on sutent too and that they will be along shortly to share their experiences with you. 

    I've had a little look around the forum for you too and searched for other members who have been taking Sunitinib (Sutent) and thought I would mention this thread and in particular [@spagetts2000]‍ 's responses. Spagetts2000 (Jeanette) has also been taking Sunitinib and other types of treatment too so she would be I think a great person for you to chat to! Don't hesitate to reply on that thread and I hope that she and others affected by kidney cancer will be along shortly to share their stories with you. 

    Our nurses are also available on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm so don't hesitate to give them a call if you have any questions and to talk things through with them.

    I hope that you manage to find the right treatment for you and that it works well for you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator