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Being referred back to breast clinic

Veroni1
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Hi. I have had a lump under my nipple that is very painfull so I got it checked by my bcn who said she thought it was scar tissue from the op to remove my invasive ductal tumour, however I know my breast and to me this didn't sit well so today I had an appointment with my GP and explained to him about the visit, he agreed with me saying he didn't feel it was scar tissue either  so I asked could it maybe a cyst which I was prone to having,but he said he didn't think so as this was very hard where a cyst would feel spongy.  So he said instead of reffering me back to oncology, as they are more chemo side than diagnostic he was reffering me back to the actual breast clinic where they will do all the tests to see what it is.and that he will put it as urgent as I am not yet a year post surgery. I'm a little freaked out that this could be another cancerous tumor and may have to go through treatment again. My hair has finally come in in the last month , nice and curly and grey and white. If I was a pensioner I'd be happy no need for perms anymore.  But the thought I may have to  lose it again  is a little upsetting.  

So I  need  other people who have had similar  to let me know what to expect as I am sure a mamagram is going to be very painfull this time. 

  • Offline in reply to Veroni1

    Hi Veroni,

    I am so sorry that you are going through this all over again. 

    I had a lumpectomy 13 years ago, followed by Tamoxifen. Six months later, I discovered a larger lump in my other breast. My surgeon thought that this was breast cancer too, but fortunately, a biopsy proved otherwise. Almost a year to the day of my first surgery, I discovered a smaller lump in my original breast. This time, I wasn't so lucky and it proved to be another cancer. I had a double mastectomy, folloed by Letrozole for 6 and a half years.

    I had initially been told that my cancer was one of the less aggressive types and unlikely to spread, so I was quite puzzled by this. I had the double mastectomy because my surgeon still felt that the lump in my other breast was pre-cancerous, so I felt that this was the best option. It was disappointing to have to start all over again after only a year, but I am still living a busy and fulfilling life.

    I sincerely hope that you get your results soon and that all goes well.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Offline in reply to Veroni1

    Hi Veroni,

     

    Another 3 weeks, bet that is really dragging for you, but great that you have a sister that does understand it, and family that is going to be there for you, even if you know they can't understand what you are going through and the emotions of it all, they find it very difficult to know what to say or how they are supposed to be, my support had been a very good friend, and he likes to ignore it all together and pretend it never happened and my daughter really didn't want to know anything about it. Although that suited me.

    I was back in hospital yesterday, and had to go back for tests today, I was lucky and got my results straight away, so I am now waiting on an appointment as I am going to need sugery to remove part of my bowel / colon / intestine, I am sure they are all the same thing I just don't know what to call it.... I have been told that I am at the top of the list for the next available appointment to see them and discuss it, but someone else could easily come along and need care ahead of me, so it could still mean weeks/ months of waiting.

    It really feels that our bodies hate us sometimes, and completely agree that films show a very different side and can't possibly touch on the emotion and how it continues to affect us, I don't watch any soaps so don't know anything about Carol.

    I know your mind is going to be focusing mainly on the fear and dread of going through it all again, I don't think that leaves any of us for quite some time, but more focused for you as things are happening, it is that horrible unknown of what you are going to have to go through, what treatment you may need this time if anything is found, One thing I wish from last time was that I had more time to consider my options, so at least you have that, you are going to be thinking about it non stop anyway, so you might as well put this time to good use and think about how you would want any findings to be treated.

    Keep in touch.. x

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