Hi JaniceMe,

It sounds like there is still a bit of uncertainty here so I hope you're able to find out more about this soon. Don't be hard on yourself, you're going through a lot and I'm sure you've been doing the right things at each point.

If you have any questions or concerns about your treatment, do be sure to discuss them with your doctor/specialist. If you feel you'd like to talk things through with one of our nurses, they're available on 0808 800 4040 (Monday-Friday, 9-5).

My reply will also boost your post so a few more people should see it, and if anyone has similar experience to share then hopefully they'll be along soon.

Wishing you all the best,

Ben
Cancer Chat Moderator

Hi just had call saying Chemo set for next week although in my conversation with consultant told him away from 13th for week an he said not to worry as would be a while before any treatment an I would see him first! So have said can they reorganise and even the lady was cross that no letters sent out or no calls to let me know so said she would keep the one with consultant so I can see CT results an talk about treatment face to face. 
thank you for replying and hope everyone keeps well

Had the most marvellous time in Brighton with me an my 3 daughters. Had to use a wheelchair as the tightness an breathlessness has not improved but I am still alive an although can't do a lot physically the joy I feel at spending time with these precious girls means the world to me. And no problems eating so plenty of fried breakfast an takeaways! Back home now an do hate that I need to rest so much. Have tried fighting the breathlessness but it wins every time an I feel guilty knowing my daughter doing everything when before I loved organising.

Seeing consultant tues ready for chemo Thursday. Very apprehensive as had allergic reaction to first stuff but this completely different one so fingers crossed. Daughter getting a bit emotional as if I can't have this one there is option for the liver spots. Much as I know the Consultant know their business Cancer has a mind if it's own an I think it's better to go with an open mind and every improvement treasured. 
Oh Chemo Guard has arrived an seems simple enoughto use but reakon what with cold cap as well best take a hot water bottle!! Well keep well out there we are so brave an deserve every little glimmer of hope we can get x

Well mixed week really. Was due to start chemo an went to see Consultant who said 6 months with treatment an 3 etc without and when I asked what would kill me said my liver would enlarge an I would get jaundice and things would pack up. On tues morning get a call to say bloods showing I am anemic so no chemo anyways..went for blood transfusion an they had lost Cross Match of bloods from previous day so had to wait 1.30 for new results. Then my body rejects it! So had piritin and liquid put through an now will be 5pm before finished. Shattered both physically and emotionally as always new it was long prognosis but us all in our bubble never thought so soon .