Hi I was diagnosed with a right upper lobe of lung adenocarcinoma stage 1,back in May 2019.I had the surgery which went well,unfortunately,within 24 hours I was admitted to intensive care with collapsed lungs,sepsis,delerium and others(the surgery itself had gone well and they were happy that they had got all of the cancer out).They had wanted me to have follow up chemotherapy,ut as I was so ill post op,I was not a candidate.
Then came covid and I had been doing well by the time I had a follow up in September 2020,I had niggly pains in my sternum and a ct scan showed up that the cancer had spread to my sternum and 4 sites in my right shoulder,I was told it was stage 1V metastastis to bones,I then had palliative radiotherapy on 4 occaisions that seemed to have helped.
In the meanwhile I was noticing (apart from sternum pain) that I was having pain on the good side of the left lung,radiating from under left armpit,back of left shoulder blade and round to the left ,under my breast.After another scan,I now have it confirmed that the sternum activity has increased as has both lungs.
I am about to start Immunotherapy (Pembrolizumab/Keytruda),which I can stop if I get severe symtoms.I am getting extremely good care and support,couldnt be better.I didnt want chemo and I am not sure that I would be a good candidate after my post op time in ICU.I also spent the whole of March this year on the Palliative ward,even allowed visitors,but my family were told to prepare themselves as I had double pneumonia and sepsis and wasnt aware or let off my hospital bed for 3 of the 4 weeks I was there.My family now call me Lazarus as I just suddenly picked up,helped of course with the amazing care I got.
However, I start my first treatment on 28th June with 4(if I can tolerate the side effects) 21 days apart.I am building myself up as much as I can,food and drink wise because really want to give it a goI am a little concerned though as this week the pain has really worsened and I am worried that I may not be well enough.I am seeing my nurse this week and can call the oncology day centre but the main reason I am writing this,is can anyone who has had this,let me know their experiences,good or bad.I am 62 and live on my own,although I have a lot of support I can call on,I am just wondering just how much to expect albeit we are all different
Thankyou for taking the time to read this and any experiences would be much appreciated