HER2 positive breast cancer

Hello over the past 6 months I have completed chemotherapy and had a lumpectomy. I now have risidular breast cancer and will be having further surgery to remove another small section of my breast and then will be having 14 cycles of TDM1 has anyone here revived this maintenance target treatment. It has been explained to me what this drug is and how it works but my biggest fear is I really struggled with my chemo before and had lots of viral infections and lost so much weight and suffered really badly with depression and anxiety. If anyone has received TDM1 please could you share your experience with me ? 
thank you 

  • Hi Avril

    how you getting on with the Kadcyla? Where are you at on the treatment front. So I’ve done 6 cycles now - have to say the first 5 were tolerable and to be honest - just like many of the other ladies on here I had other complications that were perhaps masking some symptoms ( so I have a post op frozen shoulder that has been very painful and has kept me awake which ended up with my having a steroid injections ) ). So yes my last one - end of aug was awful - terrible anxiety and sleep disturbances and general chemo ish yuk.lots of tears .  I definitely think all the chemos mess with your thinking and beyond the ‘chemo fog’ - I just think it feels like being poisoned - I can only liken it to the worst kind of hangover.  And I hadn’t had it explained to me that I’d have to do 14 in total. Just we will consider some more in our August catch up. So felt physiologically floored when they said I would continue up to December 21 - it was like nooooooo not another Xmas limping through. I should add I’ve also recently stopped taking pregablin ( for neuropathy in arm) so I do wonder if I am experiencing some withdrawals - it feels like what I imagine withdrawals to be like. Anyway - like everyone says - in the long run this will help our survival - so... must be endured I guess . Think I need to work on psyching myself up for this next set of hurdles Xx