Ductial carcinoma

Hey all,

 

I am 24 years old and yesterday I was diagnosed with breast cancer. I'm the worlds biggest Heath worrier anyway and now my biggest fear is coming true  

 

Around 8 weeks ago I noticed one of my breasts felt lumpier than the other so thought I'd get it checked. Dr had a feel and thought it just felt like lumpy breast tissue but to come back in a few weeks if it hadn't died down. So back I went, and due to my Nan dying from breast cancer at 39 the dr thought it would be be wise to refer me to the breast clinic.

when I went I was an anxious mess and the consultant said he could feel the difference between the breasts and would send me for an ultrasound but that it was likely to be nothing sinister. When I went in they had a good look around on the ultrasound and found two 5mm lumps and took biopsy's but again, said it was unlikely to be sinister. Then I was worried sick for days and got the call to come in and bring someone so of course I was an absolute mess knowing full well what I was about to be told.

the consultant has told me I have Ducatial carcinoma in situ and currently unsure whether or not this is invasive. 
 

I have an mri on the 21st and results 5 days later to come up with a treatment plan. I am bloody terrified and have a back ache and I'm convinced it's linked and that it's not just In the breast I was found to have low grade abnormal cells on my recent smear also and have a colposcopy on June 17th

 

i have two toddlers and im an utter mess! Any advice would be appreciated 

 

Parents
  • FormerMember
    FormerMember

    Without your results, it's hard to say what the plan will be. I can tell you though, that Ductal Carcinoma can be treated conservatively. I had the same thing two and a half years ago and I still have an intact breast with just a tiny scar. It very much depends whether the lymph nodes are affected, because the cancer can spread if it's reached them. They will take a biopsy of your lymph nodes during any planned surgery to find out and deal with anything as they go. Generally you have some radiotherapy afterwards to ensure that no cancer cells have got away. The operation is a piece of cake and I went home the same day. My root canal treatment was miles worse. The radiotherapy makes your skin sore and itchy and you may feel fatigued. Get some E45 lotion. 
    Trust your medical team, they are all very experienced and understand how anxious you are. Everyone I saw was so kind and helpful. There is help out there afterwards if you need it, so do ask. 
    Wishing you well and and easy journey through this,

    Lyudmila.

  • Thank you for your response,

     

    I am just praying it hasn't spread and I absolutely have to hold onto that right now I guess! I'm sorry to hear you had this also but it's great to see you've come out the other side of it and it has certainly given me hope. Everyone seems so lovely so far ️

Reply Children
  • FormerMember
    FormerMember in reply to Forevergratetul21

    Hi, You are possibly at the worst stage, because it's the not knowing what's going to happen that causes the awful axiety. Believe me you always imagine the worst. Once you get going with the treatment, you will find that you take one step at a time. As I said, I had DCIS and when I received the news, I went home by myself and was convinced I was going to have a mastectomy and chemotherapy and all my hair would fall out. It didn't happen and it rarely does, unless it has spread radically and it's lain there untreated for years.Take this step by step, don't try to rush ahead to an imagined conclusion because it may never happen - and you know what they say about worry; it's wasted energy. Not only that, it will pull you down mentally and you need a positive mindset for what lies ahead. I think you said you are keeping the relevant correspondence, that's a really good idea because you will have it to refer to if something is unclear, and ask for handouts at the hospital which will have a lot of the answers you looking for. Try to take someone with you for appointments, even if they have to wait outside because of Covid restrictions. I did the whole thing on my own, but would have loved to have had someone to support me on diagnosis day. Keep asking questions here too, there are lots of us out there and all willing to support you. Take care and keep strong,

    Lyudmila