Polycythaemia and Tiredness. How tired do you feel/get?

Hi All, really grateful for any input here. 
 

I am a Polycythaemia sufferer age 56 and have been for a few years now. I am pretty active playing competitive tennis 2-3 times a week, looking after 2 kids 9 and 11  ( with wife) and running my own business - desk based. 
I find currently that most days that I am tired in a way that I have not had before or at least not in such a persisting way. It is like everything is a physical effort and after a weekend of childcare I can't do much more than work for the next 48hr and want to go to bed at 8. 
what sort of levels of tiredness do others feel / experience? 

  • Welcome to the community Phil although I'm sorry about the tiredness you've been experiencing lately. 

    The charity Blood Cancer UK have some handy tips and advice on coping with fatigue but if you're worried about this change, it may be worth getting in touch with your GP.

    Hopefully some of our PV members who have contended with this issue will share their experiences and advice with you soon but if you'd like to have a chat with one of our cancer nurses about this they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Kind regards,

    Steph, Cancer Chat Moderator