First breast surgeon meeting

3 weeks Sunday I had my routine mammogram, 5 days later the recall letter, 6 days later breast centre , where I was told I had a 1.5 cm tumour , chose my treatment centre . Today first meeting , results of biopsy. Early breast cancer is very surreal,  I feel well , I don't even have a lump and yet here I am , I have cancer . I feel very lucky to have been seen so fast and I'm glad I chose this hospital . My dr and nurse today were completely brilliant , they had so much time for me. I'd gone in all guns blazing , thinking I'm team mastectomy , just do it,take it all away . They gentley  directed me towards lumpectomy & radiotherapy. I still have worries about long term effects of radiotherapy , but having a mastectomy is clearly a big deal. Having choices comes at a price , what If I went for mastectomy and then regretted it ? Being at the centre was very emotional, obviously most people there were a lot obviously iller than me , I felt almost a fraud , I also felt a huge compassion to people who are now my tribe, I'm no longer an outsider looking in feeling sorry for people with cancer  , but beginning to really understand their journey. It was awful seeing so many older frail people on their own, which seems so wrong, I tried to chat a bit , some people seemed lost , just a simple hello .It felt a huge relief to be told  kind of cancer I have , oestrogen receptive , to have a plan , to have some reassurance, to have a bit of control,  but I also realise this is just the beginning of a long journey , that I'm sure there will be other days when I don't feel so positive. Anyway my beautiful tribe of cancer people , sending lots of love and posotivity , so grateful for this forum , where we can safely express what we really feel , and learn from each other and support each other

  • Hello Kebb

    more than happy to answer questions , I want to help / support as many people as I can . 
    so weird regarding tiredness before ..... for 7/8 mmths before I kept saying to my husband I think there is something wrong with me as I walk my dogs every day and the hill I walked up everyday had become a huge issue for me ..... I was exhausted and felt like I was going to have a heart attack .... yet I had been doing it for years! My friends just kept saying well your fifty now it's your age ! But it was so sudden ..... anyho since the op I am walking back up that hill and not clutching my chest thinking I am going to have a heart attack ( little dramatic I know !) . I was just exhausted on dog walks but fine in myself ! 
    Late radiotherapy- so my personal opinion on this is that forgot me ...... I was put forward for chemo at 6 weeks post op as I scored a 20 .... then after I rang about something else they changed their mind and said don't go to the apt as you dint need chemo , you will get an apt for radiotherapy. I then chased this 4/5 weeks later as I had not heard anything and suddenly the week after I got a letter calling me in to the radiotherapy dept. When I went for radiotherapy ( now at 17 weeks) I asked if it was due to covid I had waited so long .... they says they were not affected by covid and there were no delays no . So I thought ..... yep was forgotten ! Anyho ..... they reassured me it didn't matter when the radiotherapy was done as it was only mopping up ( like an insurance policy ) just incase any rogue cells had escaped ! So I felt reassured ! 
    So you don't take tamoxifen ? I must admit I do , I def want to follow their advise and give myself best chances of survival but I totally understand it's very individual and if you don't want to then that's your choice. 

    how are you feeling a year on ? have you been ok coping with future mammograms ?? I am not sure what's next for me regarding follow ups etc as I haven't been told .

    I am happy to answer any questions you have .

    take care

    sally 

    x

  • Good luck today Sue

    if there is anything you want to talk over after your apt then let me know. 
    sally 

    x

  • Hi sally

    Ahh Thank you.  I have just got back I will be having 9 sessions of radiotherapy 4 of which are boost sessions due to being grade 3.  Thought I would be having 3 weeks worth but she said they have changed that now and doses are stronger but over a shorter period. CT planning scan next week due to still healing and then sessions will start about 3 weeks later.

    How are u feeling today good I hope. 

     

    Sue x

     

     

     

  • Hi Sue

    Glad your back and have clarity . Yes that's why I had 5 sessions as it's less but stronger doses.

    I had stage 2 so only had to have 5.

    yuu will get your tattoos at the ct scan .... it's all very painless and nothing to worry about .

    yes I am ok thanks.  Have a week off so am jet washing and preparing my garden for soon to be visitors as finally next week I should be able to have people round for a cuppa in the garden ! 
    tahe care and if you think of any questions let me know , if I can help I will ! 
    be safe

    sally x