E T

I have had ET since 2007 I have had several different medications to help lower my platelets and have been on Hydroxyurea for 8 years 2000 mg a day.i have managed well up until a few months ago I can't put my finger on it but I don't feel 100 %. Tidiness bones aching, heartburn lots of flatulence [Sorry] unfortunately due to covid I'm not seeing My haemotoligist only telephone conceltations which is always just come for your bloods pick up your meds I just don't know why I feel like this now after feeling great for last 13 years does anyone have any advice please 

  • Hello Jeni1958, 

    It's a shame that due to covid you haven't been able see your haematologist. Given these new symptoms and the fact that you are feeling that something isn't right, it would be a good idea to ask perhaps to talk to your haematologist even if just on the phone to start with. So perhaps in the first instance you could try and speak to your GP and see whether you could talk to your specialist or get some advice on this as you haven't been feeling 100% recently. 

    I hope you manage to get this looked into  and that you feel better soon. 

    Best wishes, 

    Lucie, Cancer Chat Moderator