[@Barbm]‍  wow so you had 8 rounds of the 3 of them. Did you have a rough week and then felt a bit more human? What was worst with Docetaxel with you.. I was told first round is worst and 5th and 6th will be easier. 
I replied to you before but can't seem to find it hope you're having a nice weekend x

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[@Trixie13]‍  I'm so sorry I've just seen your reply. Thank you so so much for putting me at ease.. you are so funny... I actually try to act quite calm in front of nurses but inside I'm a bloody nervous wreck ... but you are so right we have every reason to be a bit crazy just now ..and yes the team are wonderful and know their stuff so I need to just chill out... I downloaded the Calm app yesterday and used it last night... what a fab app lots of great things on it. It's my go too now. 
Hope you're having a nice weekend xx

Hi. I was down for 6 cycles of all 3 but I was doing so well ( the tumours on both lungs and 2/3 of the tumours on my liver had gone) that I chose to do the other 2 cycles in the hope of getting rid of the last tumour. I'm stage 4 so every bit helps. I seemed to get worse after each session. The 6th to 8th have been really tough. I was in hospital with pneumonia and anemia which required a blood transfusion and I'm currently back in hospital with pneumonia and small blood clots on my lungs. As I've completed the chemo now I'm not expecting anymore problems. I'll continue on the other 2 every 3 weeks until end of life now. 

The worst part for me was the injections. I found them very painful but got around it by injecting myself just as I was going to bed. The side effects generally took about 2 hrs to kick in and I was asleep by then so it was much better. Everyone reacts differently to docetaxel. It's not pleasant but it's given me hope of a future with my family so I'm a firm supporter.

Good luck with your treatment. Hopefully you'll breeze through it but if you're affected just think of the bigger picture and it'll get you through. We are warriors after all.

Barb xx

Hi,

I take Ondansetron for 2 days and I take Metaclopromide 3 times a day for a week. 

I think they reduced my dose if the 'red devil' this time but not sure so need to ask them next time as handled it a lot better than the first one. I struggle with the Filgastrim. I seem to have started a phobia against them! I think it's because they look so brutal with metal rings! It's not because they hurt!

I had a headache after the first time but not this time. I'm suffering from a sore mouth so I use a mouthwash the nurse gave me and I juice pineapple which my friend said would help.

I hope you are feeling ok. X

Hi [@TianT]‍ ... nice to hear from you. I'm getting the same antisickness tablets this time ... so hopefully they work better than domperidone... now what chemo are you on at the moment? I've not had a sore mouth with EC as yet but I rinse with salt and bicarbonate soda at the slightest twinge. Have you tried that? About 4 times a day. 

I was told the 4th round with Docetaxel and the other two above would probably cause a sore mouth. Someone said to suck ice cubes or suck icepoles during the infusions really reduces the risk of having sore mouth but who knows. 
Im doing fine now it takes about a week after chemo for me to be more normal with energy levels and appetite... last EC for me on 9th April though then different one on 4th cycle. I can really relate to the injections I'm feeling the same not wanting to do them ... but I do xx

Hi,

I'm on my last of EC on the 9th too then change to Docetaxel. My oncologist told me that it will make me really tired so we shall see.

I think I may eat too much spicy food! I said I wasn't going to this time but I can't help myself so hence the sore mouth! I must try harder! My appetite has gone through the roof! Some days I can't stop eating, I find it eases my nausea.  I also seem to have a bit of a sweet tooth such is not at all like me. I'm baking cream slices and apple tarts and stuffing my face!

Tina x

I'm laughing so much at you stuffing your face ... I wish I could I can't eat big portions it's got to be little and often with me. Is it the 3 you are going onto Docetaxel and the other two? I've been told I will be in chemo ward most of the day that day then next two infusions will be lot quicker. What about you? Oh I love a cream/ custard slice too ... you tuck in and enjoy while you can xx

Do you have a picc line? I'm hoping to get one as soon as i can as it looks so much easier and less bruising!

I am going on to the three on the 30th April. I've been told I may lose my nasal hair and eyebrows! Have you lost your hair? I shaved mine off as I kept pulling it out and leaving little piles all over the floor! It was already very short as I shaved it for McMillan in August 2019 so kept it short, never dreaming my own hair would one day fall out!

Oh gosh we are going onto the treatment on same day too... 30th April ... be nice to compare and cheer each other on ... no I don't have a picc line as my chemo ward don't really use them... but my hand and arm was sore after last infusion and still is so I'm not looking forward to the 9th. I'm hoping it will be less painful by then. Plus I will ask for numbing cream too. I think if you are just getting 6 treatments my team like to just use cannula method. 
I lost my hair after 1st treatment the 3rd week. It went so matted we had no option but to shave it off. I sobbed all the way through ... but then loved it and still do ... my nasal hairs have gone too and my nose runs but also gets dry and scabby inside and then bleeds ... wonderful .. not !! ... small price to pay I think though for what the chemo is actually doing for us. Xxx

Morning!

I'm sure my hair is still trying to grow! I have a few patches but that's where I've pulled it out!

Are you having 6 rounds? What's happening after your last one? I'm having 7 rounds then probably a masectomy.  I told them they can take both and they they said they can't due to covid! They said they can do a reconstruction but I told them I don't want one and it would be quicker to take the other one so I'm pushing for a double masectomy either way! What the heck covid has to do with it I don't know! Made me laugh though! After my operation I have a 5 week break then I go on to have 18 rounds of Herceptin, one every 3 weeks. I love my boobs and I will definitely miss them but I'm prepared to lose them if it stops the 'nasty lump' coming back!

You say you have your treatment in a ward, where I live we are so fortunate to have a brabd new multi million pound McMillan cancer centre. It's amazing!