coming off of Norethisterone after 6 months

Hi

My consultant prescribed me norethisterone to take 3 times a day for 6 months while I was going through chemotherapy. I stopped taking it last week and have had very abnormal bleeding since. For the first day there were very large clots and I was leaking through pads within 2 hours, but for the next 3 days it was very light, and one pad would last me all day. However, now on day 4, it has become extremely heavy and I am leaking through tampons and pads within an hour. I have already managed to leak onto my car seat and one of the arm chairs in the living room. I am now refusing to sit on anything other than a wooden dining room chair in case I leak again (wood is easier to clean than fabric). Has this happened to anyone else? And if so, does anyone know any tips to help?

  • Welcome to the forum Em123nott although I'm sorry for the reason you're joining us. It sounds like a very difficult position to be in at the moment.

    Hopefully some of our members who have been in this situation will be along soon but due to how heavy the bleeding has become again it may be worth letting your consultant know as they'll be in the best position to advise.

    I do hope the bleeding starts to improve but if you'd like to talk things through with one of our cancer nurses they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Kind regards,

    Steph, Cancer Chat Moderator