Hi Julie,

A very warm welcome to our forum. I am glad to hear that you have done so well with all of your treatment. The question you ask is one that is impossible for any of us to guide you with. There are so many different factors which influence a decision like this, such as your type and grade of cancer, whether or not there was any lymph node involvment, any family history of cancer, your age, your general health, etc.

I can fully understand that you want to do what is likely to be best for your body, but the person who has most of your facts to hand to make this decision is your oncologist. Have another chat with her and ask what she would advise if you were a member of her family. You will find it helpful to write down a list of any questions before you speak to her.

I sincerely hope that you can eventually reach a decision which is the right one for you, but as (I presume) you are not a cancer expert, I would leave this to the professionals who are responsible for your care.

Please keep in touch and let us know what you decide. We are always here for you.

Kind regards,

Jolamine xx

Hi jolamine, 

Thank-you so much for your response, it is so hard to make a decision, I  have read after taking tamoxifen for 5 years it  has a 0.2 percent benefit if you weigh the side effects up is it worth it ? my tumour was a grade 2 and I had 2 lymph nodes taken out they were all clear it would of been just radiotherapy but because of the her 2 positive I had to have chemotherapy and herceptin I'm very healthy otherwise , I have a telephone call with my oncologist in the next few weeks so hopefully she will guide me a bit better,

Thankyou so much and hope you are well 

Kind Regards 

julie xx

Hi Julie,

I am glad to hear that you are very healthy apart from this. Do you know what type of breast cancer you had? Letrozole did give me a lot more trouble with my bones and joints than Tamoxifen did, but this is normal. I took this for 6½ years, before finishing in 2017.

Draw up a list of your concerns and discuss these with your oncologist, then be led by her advice.

Kind regards,

Jolamine xx

Hi

Just had an oncology appointment today as I stoped taking Letrozole for two month. They gave me terrible aches and pains in my body, mainly my legs. Some people are more affecte by this than others so it’s really a matter of trying out what is best for you.

My oncologist recommended trying Tamoxifen instead which I will start from tomorrow.

kind regards

Cilly