Ovarian cancer for the second time

I'm really scared. I don't know how to react or feel anymore. My future has been taken away. My kids are going to face growing up without a mum. 
 

I had ovarian cancer 6 years ago when I was 32. I had a ovarian cyst that ruptured when I was 8 weeks pregnant. My baby survived and she was born. After that I had a full hysterectomy.  No chemo at the time as it was a year after the rupture and the type of cancer it was chemo would have only been 5 percent effective. I was fine for 5 years.

Then in June this year I started having blood in my poo. Went to my gp and took ages to get through the hospital system due to Covid and had been signed off from the hospital from my original cancer. So they eventually found a mass and it turned out to be related to the cancer from before. I started chemo in September and have now finished. The cancer hasn't completely gone, I have a very small bit left. I've got incurable cancer. I'm going on medication to slow down the growth until chemo again. But I can never get rid of it and at some point I won't be able to have chemo anymore.

I've just started to post to forums as I need to talk to anyone who might be going through this and heard this news. I've got a young family and I can't deal with this. I don't know how long I've got left. I feel well at the moment. But I know what eventually is coming and can't bare for my kids to be left without a mummy.

 

  • I am so sorry. I have ovarian cancer. I had a full hysterectomy followed by chemotherapy then because the cancer spread I had 12 months of the drug Avastin.  I finished treatment a few weeks ago.

    My last scan was clear. I can understand what you are going through and send you love x

  • Hi. Sending you lots of love. I have womb cancer so different but a colleague of mine had ovarian cancer and she was given bad news. She then asked if she could take part in a clinical trial. She said it worked. She's a lovely, energetic lady. Perhaps you already have but ask about clinical trials. Xx

  • Thank you for replying. So glad to hear that your scan was clear.  I'm going on a drug called Niraparib which hopefully I should start at the beginning of March. I just can't get very hopefully. I've been told it won't get rid of it, just give me more time.

    best wishes x

  • Thank you for replying. I'm going on a drug call Niraparib which has only just been approved for use in the last 2 weeks. I wonder if this is the drug from the clinical trail your colleague had? Going to try this drug first. If doesn't work will be asking about clinical trials. It is something I have discussed with them at the beginning of my treatment. But they wanted to get me started quickly as in so much pain and any clinical trials would have taken time.

    Best wishes x

  • hi Puffin

    i am so sorry to hear you are going through this. It is an incredibly difficult time for you.

    I have recently been diagnosed and won't know anything more until I meet with my oncologist. I go from optimism to despair in a heart beat. I have a deep faith and have handed this all over to the only person who can change the course of my life. I have days fuelled with anger and then self loathing for being so selfish. You have children to consider and I truly understand your fears.


     A few other people have mentioned this but I read a great article on the new ovarian cancer drug called 

    Niraparib which they say is the latest breakthrough for ovarian cancer. Take heart in the fact that you are young and strong and you can sustain the treatment. Have faith,keep a positive attitude and make sure you fuel your body with lots of goodness to keep you strong. Excercise when you can and rest when you need to.  If you can, try meditation to cope with your anxiety levels 

    sending you hope and love x
     

  • Hi Meetski

    Thank you for your response. I wish you luck and hope with your diagnosis.

    I'm placing hope on this new drug and that I am fit otherwise. I'm going to have good and bad days. I'm hoping I will be able to accept it soon and live my life again for as long as I can.

    sending love x

  • Puffin stay strong. I wish you so much love and let's hope that there are more and more new trials that can take this horrid disease away for all of us  Please will you keep us updated. I think this forum is tremendous for people to share their concerns and even their wins x