Want to talk to others with breast cancer

Please can some one help  is there a app  i can use to chat to other woman in the same situation as myself. I was told 3rd September last yr. I have breast cancer  i had half my breast and lymph notes removed.. Im starting radiotherapy  soon and scared as i feel im alone with whats going on 

 Love regards Maz53

  • Hi [@Maz53]‍ 

    I'm currently going through treatment too. Would love to have a mate! 

    I'm 32 diagnosed 22nd Dec 21, grade 3 ductal carcinoma. ER+ but HR2 was borderline so will have to wait until results from Surgery for that one. Surgery was postponed after I had an allergic reaction to the dye for the SNB.

    I've been pretty cool about it all so far but I'm.starting to worry a bit more now. I'm really conscious its a high grade and I'm concerned it's growing every day. My lumps always been tender but it's more painful now. I'm sure I'll get my date soon. Think I'll be having chemo then radiotherapy and hormone therapy. 

    What type cancer do you have? Do you know your hormone status etc . 

    All the best 

    Phil xx

  • Hi Maz

    I was diagnosed in June'19. I ended up having 4 ops, last one a mastectomy. The tumor was bigger than shown on the mammogram . Mine was ER positive PR positive and her2 negative.Grade 2.    I finished my radiotherapy this time last year which I found absolutely fine. I am now taking Hormone tablets, can't remember name!!  which I find okay apart from the hot flushes. Like you, I still really need to talk to people who have been/ going through the same. 
     

    im here if you need to ask questions or just offload. Take care x

    That goes for anyone who needs a chat, Phil I hope you get your date through really soon xxx

  • Hi Annie 

     Thank you for lovely and reassured advise.   

      Im just alone with this even thou im married but he not helps me cope got no fammily about. I start my radiotherapy Monday. Can you look at yourself in the mirror. I cant at the moment as only been 3 mth since my opperation. 

      I seem to have lost direction where im going. I seem to hide behind bottle of wine  i no not the thing to do but i feel comfort 

      Hope your feeling better  i really send my love regards xx maz 

  • Oh Maz, I so sorry you are feeling that way, and not getting the support you need. Believe me, I drank a few bottles of wine, still do!!! To answer your question, no I can’t look at my body in the mirror, still. Not because it looks horrid, but it makes it real. I took a long time to look myself in the eyes too. Radiotherapy really is ok. I went through stages of feeling tired, but it really was doable. My problem was my skin burnt really bad, I think that’s because of mastectomy, so the rays are aimed on the skin not the flesh of the boob. If you don’t mind me asking, what kind did you have? As in grade, hormone etc. Any lymph nodes involved? I had one. Have you tried talking to you breast nurse? They are so helpful and kind. They really helped me when I wasn’t coping very well. I’m having a glass of wine. Cheers Maz xxx
  • Hi Annie my new friend 

     I had my lymph notes removed  aswell  i am stage 2    my breast nurse good but never get chance to talk with her. Can understand as busy.  I did have a good friend but when she knew i had cancer she never seem to borther  with me. 

      I got glass wine so hears to new friendship im hear for you anytime u want to chat or let off steam   i was told bout sun burnt feeling so got some E45 cream . Do you loss ur hair. 

     Lots love Maria xx 

  • Hi Maz 53,

    I fo hope you feel supported as I see quite a few people have responded to you. It really does help.

    I was diagnosed in October 2019 and had a breast reduction when tumour was taken out. I then had 15 days of radiotherapy after that  and completed my treatment exactly a year ago. 
     

    I found radiotherapy to be easy enough. It definitely doesn't hurt but your breast skin can get red/sore towards the end of treatment. It's very important to keep it moisturised. That really makes a difference. I always felt frozen when on the machine  to be honest! The rooms are always cold but apart from that it's a quick procedure and normally each session is all done within about 10 mins. 15 at the outside  

    I guess tiredness is a common side affect. It didn't really hit me that hard and generally I felt fine throughout.  You can lose the hair under your arm but that's a good miss in my opinion!!! Hair on your head isn't affected!

    I DO know what you mean about friends not being supportive and not understanding. To be honest I don't think it's because they don't care, I think it's because they don't know what to say. People on this site DO know what to say. Can openly talk about their experiences and aren't afraid to say how it's been for them. That's why it's so helpful. I have found such kindness and honesty here. It truly helps. 

    Yes this cancer rocks us. I don't think I could take it in at first. I kept thinking this cannot be happening. But it was. Since the early low days I have 'come back' stronger and in some ways more grateful for my health and for my life. As soon as Covid is over I am ready to live again!  I can't wait. 
     

    You will 'come back' too. You will do it your way. Right now it's very early days. It took me 6 months to actually be able to touch my scars. Not sure why but I just couldn't. Now they are just my old battle scars. They look ok now. They are a part of me. 
     

    I wish you well. This is a journey you won't ever forget but the tears and upset do subside. Gradually you will re-emerge. Be kind to yourself. 
    Kebbs x 

  • Good morning,

    As kebb says, you don't have hair loss with radiotherapy, the treatment really isn't anything to be worried about. 
    yes I had friends that I am sad about still, as they withdrew from me when I needed them most. But I believe they really don't know how to react or what to say.

    Good luck for tomorrow, the treatment will be over in no time, and as said before it is nothing to worry about.

    Take care xx

  • Hi its clare I'm new here I have grade 3 cancer  recently I have had two chemos got 7 more to go  and basically  you aren't alone  I am afraid I think positive  everyday I have family friends who have supported me so much  I get up do things I don't stau in bed whatsoever  so I'm 42 from England and  I would struggle with nobody 

  • Yes my breast cancer has spread to my lymph nodes but not spread anymore ::happy: