Docetaxel

Hi everyone!

Anyone else struggling with Docetaxel? 
 

I was diagnosed with stage 1, grade 3 invasive left breast cancer in Sept 2020, HER 2 positive.

Had 4 cycles of AC alteady and started Herceptin/ Perjeta/Docetaxel  on 4th Jan, will have the second cycle next week but boy I'm terrified. Everyone said the AC so called " the Red Devil" is the worst but the Docetaxel really hit me hard! And it all started on day 3 post infusion not like on day 7 with the AC and I've experienced all sorts but more stronger than ever: pins and needles in both hands and feet, at some point I was like walking on glass, the joint pains all over my body... just horrendous and then the mucositis all over my mouth, couldn't eat for 3 days. Urinating was burning and was itching both vaginal and rectal plus the diarrhoea, 4 episodes a day. My eyes are puffy and watery and I feel like I've been climbing a mountain, soooo exhausted. And because I could feel the neutropenia coming, temp 38,1 and shivering/ sweating, I've started the oral antibiotics as I would always be neutropenic before with the AC and had antibiotics every time. So after 5 days of the antibiotic and Nistatin oral suspension/ aloe Vera mouthwash I am somewhat back to normal, day 14 after infusion so starting to recover just before my next session. Not to mention the painful nails that I still have, the runny nose with dry blood bits inside both nostrils and tachycardia-only when I'm neutropenic...
 

If anyone else on Docetaxel, how are you coping? And if you've experienced any of the above what did you do about it? Cause I don't think the Herceptin/ Perjeta does all this.

Parents
  • Hi Victoria

    I cried reading your post. I feel for you so much. I had my first Docetaxel a week ago. Feeling dreadful. Having very similar symptoms to u. But so far infection free. Dehydration is a battle. Struggling to drink or eat. Bloods show high haemoglobin levels. Trying to describe symptoms to Doc is hard. Cant help Feeling that they don't reaaly understand.

    Sending lots of love to you. I can be a lonely place, this journey   

     

     

Reply
  • Hi Victoria

    I cried reading your post. I feel for you so much. I had my first Docetaxel a week ago. Feeling dreadful. Having very similar symptoms to u. But so far infection free. Dehydration is a battle. Struggling to drink or eat. Bloods show high haemoglobin levels. Trying to describe symptoms to Doc is hard. Cant help Feeling that they don't reaaly understand.

    Sending lots of love to you. I can be a lonely place, this journey   

     

     

Children
  • I had my first Doxetaxel on February 24 and I thought I was ready to die. I felt so poorly I really didn't care. By the tenth day after chemo I finally felt like my old self. Then I had my second chemo three weeks later and am just starting to feel better nearly two weeks later. Weakness like Ive never known. Constant nausea, aches, GI tract problems. It's absolutely horrible. I truly felt like I was in hell.