Hair Loss Months After Chemotherapy

I was diagnosed with advanced-stage Hodgkin's Lymphoma (HL) at the age of 23. I went through ABVD, which did not work. I then went through DHAP and BEAM, followed by an autologous stem-cell transplant (ASCT). I was in complete remission after the first dose of DHAP, and I am still in remission now (more than 2 years after my rebirthday).

Before chemo, I had a full head of thick hair. After an entire year of non-stop chemo, my hair grew back exactly the same texture and density; one might even argue that it grew back a lot healthier. Then, around 9 months after my transplant, my hair started to fall out diffusely, most noticeably in the temple region and the front of my head. It has gotten so thin that I can see my scalp through the sparse growth. This image has been more traumatic to me than when I was bald whilst on chemo because at least then, I had the hope that my hair would all grow back.

I have asked at least 3 doctors about this, and all 3 gave me the most enraging passing diagnosis that it is classic male pattern baldness. The reason why this has been unconvincing to me is because none of the men in my extended family has this issue, and the fact that people don't just bald overnight. The other reason is because I have read up extensively on the process of hair growth and it makes sense that when the hair cycles are synchronized, there is a chance that they will fall out at the same time. But then again, if the anagen phase lasts for years, how is my hair falling out when it's not been nearly that long?

I have worn a cap for 2 years, and I want to find the courage to live while looking like a balding man, like some of my friends have; but my mental state has deteriorated to a point that I have repeatedly reached the conclusion that I don't feel like living anymore. I know this makes me sound weak, and vain, and pathetic, but I have waited patiently for life to go back to normal but my hair is a constant reminder of the trauma that I had to go through. My grandmother passed away shortly after my diagnosis, after locking herself in a room for 2 weeks; and I have always felt somewhat responsible. I am so done with all of this.

I've been trying to gather more information about this online for months by now. I have read many posts by people who have faced the same problem—delayed hair thinning post-chemotherapy. However, I have not read even a single post that addresses the possibility of a recovery. Some of these posts are more than 10 years old and I just wish they could come back and tell me that my hair will grow back to the same thickness pre-chemotherapy. 

  • Hi jorgensen,

    Welcome to Cancer Chat. I'm sorry to read about how you're feeling about all of this, but I can perfectly understand what you mean about it acting as a reminder of the trauma you went through.

    It sounds like you could perhaps initially do with further understanding about the issue so you have the information you need to help you with this. I'm not sure exactly who you've spoken to about this so far, but it may help to talk things through with our nurses. You can reach them on 0808 800 4040 - Monday-Friday, 9-5 (excluding holidays). They won't be able to diagnose or give a medical opinion, but they may be able to help provide some information and understanding.

    Otherwise, I would suggest trying to speak to your specialist (if you're still having follow-up appointments), or alternatively an organisation such as Macmillan - who have a number of resources and also people to speak to.

    Following this you will hopefully know a bit more about what you're dealing with. Whatever happens, and this may be easier said than done, but if you can then try to focus on the positives of the situation - that you are in remission, and what you have come through to get to this point. Also, with regards to the hair and others' opinions, people are rarely as judgemental as we sometimes think - but I know this may be a separate issue to how you yourself feel about it.

    Lastly, if you're feeling really not too good then do give Samaritans a call on 116 123 - they are always there for support.

    I hope some of the above helps a little. We are always here for support on this forum if you need it.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator