Starting chemo - any cold cap dos and don’ts?

Hello All

 

I'm a 39yr old mum of 2 and have recently been diagnosed with breast cancer (triple negative) and am starting chemo next week and have decided to try the cold cap. I have four cycles of Accelerated EC (fortnightly) and then 12 weeks of Paclitaxem & Carboplatin (weekly).

 

Was wondering whether anyone had good tips for a successful cold cap experience!

 

My questions are:
what brand shampoo and conditioner do people recommend?

do people go to their chemo session with wet hair already with conditioner in it?

I normally use a Kerastase conditioning mask, is this a big no no?!

I plan to wash my hair in cool bath water as opposed to under the shower head, is that a good idea?

can you tell if the cap is on properly ie tight enough? 

would you ever wear a hat if cold outside or should your hair be untouched? 
what tips do you have in protecting your hair day to day?

what should I wear?

any tips on pillows/sleeping?

did anyone try the cold therapy gloves or socks too??


Any advice grateful received!

 

Oh and if anyone has any general tips for someone's first chemo day, please let me know as I'm not quite sure what to expect and how to feel...

 

Thank you x

 

 

Parents
  • Hi I successfully used the cold cap but it wasn't an easy journey.  If you want to wet your hair and put conditioner in it prior to going to hospital that's fine though I let the care assistants do it, invest in a wide toothed comb.  I use to have an anti nausea tablet prior to the cold cap going on as it used to make me feel nauseous for the first couple of minutes.  When I had finished pop a hat on as your scalp will be freezing .  once home I use to very gently rinse the conditioner out.  Use a wide toothed comb no hairdryer or straighteners.  Use a simple shampoo and conditioner and don't wash your hair too frequently.  Just very gently massage your scalp when washing.  I invested in a silk pillow case as it allows your hair to glide rather than be pulled great for the skin too.  I would say I lost maybe 30 percent not that anyone noticed.  Best of luck

  • Thanks for your reply and tips, will have to just see how it goes I guess. Am prepared for the cold cap to perhaps not work but also want to do everything I can to help it work!

     

    Hope you are doing well x

  • Hi, I'm currently having the cold cap. It's not easy as it cools down to -6 but if you can manage the first 20 minutes you'll be fine. Take something that will distract you. After my hair has been sprayed with water and conditioner put on I have a headband put on to protect my skin from burning. You can use gauze but the headband works better. I've had 2/8 so far and lost very little hair but whether that will continue to be the case I don't know. 

    Hope that helps, Barb

  • Thanks Barb, really good it's working so far for you!

    Did you choose/buy your own headband or do you get given one?x

  • I was asked to buy one but obviously I didn't have it for the first session so took it with me the next time. £2 from chemist shop. Get one as wide as you can to protect your skin. 2 women at my first session had used it and had kept between 80/90% of their hair. Good luck. Let us know how you get on

    Barb

Reply
  • I was asked to buy one but obviously I didn't have it for the first session so took it with me the next time. £2 from chemist shop. Get one as wide as you can to protect your skin. 2 women at my first session had used it and had kept between 80/90% of their hair. Good luck. Let us know how you get on

    Barb

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