Peritoneal Mets

Celebrated my 71st birthday April 2018 with operation for Bowel Cancer which left me with a stoma. 6 months of chemo left me with peripheral neuropathy, but 12 months after last treatment sufficiently well to get back to running. However blood test showed cea of 10 which was suspicious and CT scan early February showed peritoneal mets.

 

No symptoms at that stage, and although confined to the omentum the surgeon felt that too pronounced for CRS and HIPEC, the only curative procedure. When I asked if this might be a possibility if I made a good response to chemo he agreed to refer me to a specialist Centre. 
 

4 sessions of chemo, irinotecan and Capecitabine tablets followed and scan showed stable. Cetuximab ruled out as RAS mutation (Codon 13). Other targeted treatments such as Avastin ruled out as not funded. 
 

2 month break from chemo and well enough to maintain an exercise regime of walking 3-5 miles a day. However now symptomatic experiencing discomfort lower right side. A subsequent scan has showed progression, with an increase in size of nodule from 41 to 47 mm.

 

The Oncologist has given me a prognosis of life expectancy under 6 months no treatment and under 12 months with chemo. 

It will be a different chemo regime, in tablet form, but not I believe oxaliplatin based as that gave me peripheral neuropathy.

 

However prior to my consultation I wrote to him with a number of questions, one of which was about the possibilty of clinical trials, such as PIPAC. He has offered to refer me the clinician who has set up a PIPEC trial.

I may be excluded as living outside catchment area, but if that is the only issue I am sure that I can overcome the logistical problems of turning up for regular appointments.

 

i would be interesting in hearing from anyone whose experience is similar to mine.

 

 

 

 

  • Hello Diplock, 

    Thank you for sharing your story. I hope that you will hear from the clinician who set up that trial and that you get to take part in it despite living outside the catchment area. 

    I hope that you will hear from some of our members who have had a similar experience to yours or who have been involved in similar clinical trials. 

    Best wishes, 

    Lucie, Cancer Chat Moderator