Hi Jo

I honestly think my nurse has helped me a great deal, once I was told last week you don't sort of take it all in, so in my head I had BC and bone cancer! Double whammy! My nurse called me the Friday after my appointment and made me feel a million times better, I don't have bone cancer I have breast cancer on my bone! Which is completely different, the response to the meds I'm on should be good so I'm just hopeful the doctors know what they are doing, she even mentioned to me about shrinkige and getting rid (whixh I was under the impression couldn't happen with secondary) so I'm slightly confused with that bit.

as for your aches and pains it may just be down to what your body has been through, I'm no expert as I'm very new to this myself.. they told me that there was no tumours, nothing pushing against my spine just speckles, my friend described this as ( if your butter a slice of toast it's the crumbs that are on my spine) I thought this was a very good way of explaining it..

im hoping it is nothing for you hun, and if it is you can get through it it's just another hurdle to cross.

When do you get your results?

laura xx

Hi jo. Sorry for not asking how you got on yesterday. It was my 1st day of round 3 chemo and i felt quite unwell. Loads to catch up now! How did it go? I really hope it was good results and you got to ring the bell. Im here whenever you want to chat

Hi Amy

Oh please don't apologise. I couldn't log in yesterday to here as they changed my username and the chemo knocked me out. 

I hope you are feeling a bit better now. The FEC used to make me feel drunk and I was out of it afterwards.

Mine was OK. Absolutely exhausted and can't remember the last time I slept so well!! 

I didnt get my MRI results so I didnt want to ring the bell. But as soon as I get them and its all OK, I will go back to ring the bell and get my certificate. 

My op is in 4 weeks. I'm not worried but I was given so many options that it confused me. Apparently it is a day case so fingers crossed, I won't be staying in hospital until I go back for reconstruction. What is it you are worried about?

Xx

The side effects can be tough can't they? I normally get nauseaus on day 1 and my head just doesn't feel right straightaway. If you get what i mean?? Lol. Its good you're sleeping well, that can make a big difference. Try not to think about your results too much, enjoy being chemo free from now! I know its easier said than done though. I think its fear of the unkown with the op. I worry about waking up during the op or not waking up at all. Im not having a reconstruction straightaway too. My consultant/ surgeon has said i can have it at a later stage but he doesn't want me to have it now. Ive got to go with what they say, they know best! For my left breast it will be a mastectomy but i have a smaller tumour in my right. So they said it could be lumpectomy or mastectomy too. Again, im letting them choose whats best. I don't want to take any risks 

Hi Laura

I am pleased that it sounds positive. Knowing that there's hope is something worth fighting for.

I should get my results any day but still waiting. I am.90% sure that is just muscular but just need confirmation then I can be happy. 

I'm so glad you are feeling more positive. I have no idea how I'd cope with it but my fingers are crossed for you.

Jo

Xx

Hi Amy

How are you doing? 

I've had a few rough days. Stomach pains, aching all over and general bleurgh!! Think that's a medical term. 

I wish my surgeon would make the choice for.me but I was given every option  and left it to me to choose. I'm going for the tissue expander and then back for reconstruction later. 

Hope you're doing ok. I understand that the op is scary but you will be ok. It is a step closer to the end of this scary journey.

Xx

Hi jo. Yeah, i think bleurgh is medical term lol. Im on day 7 of round 3 chemo now. Not been feeling right but i know its just the way it is with me. Im really achey too and my joints are difficult to move! I know how you feel about the op/ surgeon. I need them to tell me whats best because i really don't want the cancer to return. Right from the beginning, ive let them tell me whats best and i follow. Im not good at making decisions lol. I think the op is just something im going to have to deal with on the day. The nurse who i spoke to said its a common procedure and not a big op to have. I felt a bit better after hearing that. Hope you feel better soon 

Hi

My nurse has just phoned me and I have no idea what to make of it. She has gone through plans for the surgery (still going ahead) but said that my oncologist will need to talk me thru my MRI results. Last time I was panicking about my scan, my nurse was able to put my mind at rest over the phone. She could tell me it was OK. But this time she couldn't tell me anything but said she would ask the oncologist to phone me ASAP. But she also said that they may wait till next appointment in couple of weeks!! I have no idea what that means and my mind is racing. There is something that they need to go thru with me but the surgery is still going ahead. What does that mean?? Xx

Hi jo. Aww, sorry to hear about your phone call. It might be that the consultant can explain things to you better than the nurse. But i think it must still be a good sign that surgery is still going ahead. Ive got an ultrasound and heart test coming up and i get in such a worry about those too! I hope you hear from them again soon and they can put your mind at ease. Keep us updated