Hi. Sorry about your situation. Mine is in my lymph nodes too but thankfully no further spread. Its such a worrying time the waiting. Im seeing my consultant 22nd september to see how my tumours are getting on with chemo and im stressing about it already! Im just trying to put it to the back of my mind for now and deal with it when i know. I always think the worst too, its hard not to! Good luck with your results and let me know how it goes

Hi. Hows your chemo going and how did it go with your other scan? 

Hi. 

I am struggling to sleep and I am new on here.

Just reading your posts and wanted to let you know i am also in the same position. I have stage 3 BC but coming towards the end on chemo. Recently started to get backache so had an MRI scan to check. I havent had the results yet but due to have my last chemo tomorrow. 

I desperately want to know if my spine is OK so I can  ring the bell tomorrow. Its the waiting which is the hardest. 

I should be having a mastectomy and then radiotherapy at the end of October but it all depends on the MRI results.

I really hope you are all doing ok. It is so scary.

Jo

Xxx

Hi jo. Im so sorry to hear what you're going through. Chemo can cause all different kinds of aches and pains, i get loads of weird ones! Hopefully that will be all it is for you. It is scary and i think covid has made it worse for us all. Do you have lots of support? Mcmillian are good to talk to and on here. Theres also breast cancer now. Theres a forum on there where you can talk to others too. I really hope your scan results turn out ok for you and you get to ring the bell tomorrow. Ive also got chemo thursday. My 3rd round. Not looking forward to it and i struggle to sleep the night before because i get really anxious about it. Relaxing music can help to calm you down and sleep

Thank you Amy

I thought it was the steroids which kept me awake but I think it is the anxiety of the chemo. And now the worry of the scan. Which chemo are you on?. I started on FEC which was horrible and now I'm on TAX. Not sure which is worse. FEC caused horrible side effects. My liver went haywire and I was jaundice. Had numerous bladder infections, sickness and nausea was horrible. With the TAX I don't have the bladder problems or the nausea. And my liver is a bit happier. Its just the weakness and tiredness. Can barely walk upstairs. 

I remember starting the chemo and hating it but we can't believe how quickly it has gone. It seems hard work at first and then suddenly you are at the end. My gp told me it was going to be tough but I'm not one to give in easily so didn't think much of it. But it really is tough. You simply have to rest when you can and accept help. 

I do have support from my partner but his wife died of cancer in March 2019. I met him and was diagnosed a few months later (feb 2020)  and then lockdown. i lost my job and had very little support as my family are 200 miles away. So had to move in with my partner earlier than planned. He has been amazing. But I havent seen my own family for nearly a year. So desperate to see them but can't. I hate having to put all the burden on my partner so I will be so glad when this is all over. 

Good luck for your chemo tomorrow/today. Just think, it is one less to go.

I have just signed up to the macmillan buddy scheme. So will be nice to let off steam to someone outside my family. 

Keep fighting this. You will be a stronger person by the end. 

Jo

Xxx

Im on FEC T. My side effects have been ok for now. Nausea, headache, constipation, light head. Sorry yours have been worse. It affects people in different ways. Chemo does go very quick! I'll be half way through after today, then surgery the radiotherapy. Its good you have your partner. Do you get to speak to family another way? I think im signef up to the buddy scheme too. You're right, it does help to talk to others outside the family sometimes. Im always on here or the other forum talking a lot lol. Good luck for today too and let me know how you get on with your results. It will be ok and you've nearly completed one part of the journey

Hi Amy 

yes unfortunately there was spots on my spine, so it's definitely secondary now, they've put me on hormonal treatment as mine is oestrogen fed, I'm a week into treatment now, I've had the zoladex injection, I'm on Letrozole daily and go back on the 30th for palbociclib and denosumab injection. Feeling a little more positive now I'm on a treatment plan, couldn't wrap my head around not having an op but because it's spread they need it to target everywhere so I get it now. They haven't ruled out radiotherapy or the other chemo but they said this one is good for what I have and there's not as many side effects..

How did you get on with your consultant appointment the other day

xx

Hi Laura

How do you cope with that diagnosis? I'm waiting for results of an MRI on my spine and I'm dreading it. Have no idea how I'll take bad news. 

I really hope you are doing ok. 

Jo

Xx

I do still speak to my family but only over phone. My mum died of cancer many yrs ago so its mainly my dad, brother and my 19 yr old daughter who I want to see. We have booked to visit at the end of November but looks like we will have to postpone. 

I will let you know how I get on. I think they are trying to get my results for today so I know if I can ring the bell or not. If its all OK, I will be shouting from the rooftops!! 

Xx