Hi Kita,

So sorry to hear about your aunt's diagnosis. One she has completed the 6 cycles of Carboplatin and Alimata, she will have a scan for her oncologist to review. If there is a slight change (shrinking of the tumour), they may wish to carry on with her treatment on the same drugs. If there is no change, she may be put onto another drug or sometimes put onto a clinical trial. Yes, there is some truth that chemotherapy can be "toxic", but this means it weakens the body and can put strain onto major organs. This depends on your aunt and her health, but oncologists will take this into consideration. I have heard that Docetaxel or Mitomycin-C may be a drug for consideration, so please do ask your oncologists for all the information. 

If you need anyone to chat to, please feel free to message me. :)

Good luck.

Nat. 

Hi I have a Breast cancer spread in to my lungs and before chemo I had it in my liver and kidney.I am on maintanance chemo since August 2019 tolerating it well.I am on weekly Taxol or Paclitaxel they call it and I have no tumors in my liver and kidney anymore and lung nodules are shrinking.My onco said they will keep me on it as long as it works then they will do different one.

Dear Nat,

Thanks a lot for your reply!

All the best

Kita

Dear Denise,

Thank you very much for your reply, it seems your treatment is going very well!

I wish you all the best,

Kita

Hi Denise, 

Glad your treatment is going well. Are you on what is called maintenence chemo? Isn't it hard to deal with the Paxlitaxel week in week out? I don't have side effects from my low dose of the same drug so I assume you are on a low dose too? Now that your tumours have shrunk can they not offer surgery or ablation?

Ceyenne

Hi Ceyenne the weekly Paclitaxel is getting on my nerves honestly.I am planning to stop it in September because I want to see my family abroad and I would like to be only on 3 months observations.Last week when onnchemo I had a panic attack wasnt nice.

My onco team and hospital is rubbish.Didnt offer me anything and dont communicate with me.They dont bother once you are stage 4 they dont care too much.

Denise

Hi Ceyenne Thank you for your kind words.The problem is I dont want trial because there is not quarantee its going to work.Its only trial.I wanted immunotherapy  normal as part of my treatment not trying if its working or not.I was offered last year I have refused.I dont like to be a guinea pig then its not working.

I have seen some people have radiotherapies,surgeries even with stage 4 but I dont get a proper care.Only thing this useless doctor can do is prescribe cheap chemo which I am fed up.At least if I could take tablets instead of having annoying picc line and hospital visits.

You havent met my doctors they never cared about me.Last week she tried to tell me to not go back to work because its risky.Well she didnt care about me till now so I dont care.I am going back to work in 2 weeks time because my mental health is not to good.

I am jealous of people who get all the attention from their doctors and I dont.

Hi Denise, 

What trial were you offered? Do you remember if it was the drug I mentioned to you? If not, ask the doctors if you can have it. They can only say it's not for your type of TNBC. 

Trials are good. I took part in a trial when first diagnosed with BC eight years ago. The trial was approved and is now part of standard BC treatment for some patients. I was very well looked after during and after the trial with more follow ups and monitoring than I would normally have got. Yes, I know trials don't work for some but neither does prescribed medicine or treatment, always. If there were no trials no new drugs would ever be available so I would urge you to look at certain hospitals to see if there are any for you.

I hope you are able to take a chemo break at some point. I know very little about TNBC  but I hope there is more than one treatment for you.

Ceyenne

Hello thank you for reply.I cant remember the drug name i got rid of all paperwork.I wish I could have mastectomy so i could get rid of the lump and radiation on my lungs or surgery.I am honestly fed up with chemo.yes it works but i dont want to stay like this forever.If itnwould be a tablet would be fine.There is not many treatments for tripple negative cancer and even they are i am missing some genes so itsbdifficult.

Before i was optimistic now i have also developed lymphoedema in my right arm and nobody is helping.Just beeing fed up.I think i will stop the treatment altogether.