I was diagnosed back in March 2017 I had a lovely oncologist but he retired a few months later now I have one who just doesnt seem to be bothered.

Since November I have had 2 CT scans two MRIs and 2 full bone scans and recently a MRI on my spine as the cancer was found to have spread in 2017 to my spine ribs and pelvis.

I was on Danusamab and Fulvestrant however,my insurance company did not recognise either as a treatment to help with cancer and I had 3 weeks on intense radiotherapy every day. He always made an excuse that he could not bring up the scans etc to show me trouble getting them to load. Any time I asked him a question  since he stopped the danusamab in June last year (two weeks after the insurance compnay announced they had made a mistake and would not cover the treatment any longer) my tumour markers had been increasing  I have a friend who was, upto the coronavirus  problems, came with me to the appointments as she doesnt hold back if she thinks he is  not being up front. appointments only lasted 9 minutes.

I asked about taking CBD oil tablets he just said he didnt know anything about them and that was that. I started taking them and advised the plebotomists when they did my blood tests. 

I have now gone back to the NHS as my insurance increased my policy to £7890.00 a year and not covering my cancer treatment. My oncologist managed to get me transferred to his NHS list but since the self isolation etc only had one telephone appointment. He was hioping to start me on CDK which I read up on and it said could be gven along side Fulvestrant, however, he told me the CDT team would not offer funding as I had been on fulvestrant so only have letrazole which I started 15 days ago. 

I have developed severe back pain around the middle area of my back which  is making it difficult for me to walk, bend, pick anything up such as a kettle or saucepan of water it is difficult to get into bed or turn over once it or to get out again, also to move and get out of a chair. Some times and it is getting more often now I have spasms on the right side of the area around my back and pelvis are. I mentioned this to him on my last telephone appointment he advised me to take paracetomol and if it continues to get worse to take Ibuprophen  with Omoprizol and oramorph. I am not going to get another telephone appointment until 8th June and the NHS secretaries ent an updated letter to a doctor in the practive that I refuse to see as he is awful he never talks to you or looks at you but always either looks at the wall on the other side of his room or at his computer screen that he never changes.

I was told 3 to 5 years since taking the letrozole I havent taken the CBD oil tablets but am now tempted to take again as it seems this pain had developed since I stopped taking them. Interesting thig the sister on the ward where I had my danusamab injections told me they only usually give 12 sessions of this drug I had  33 sessions along with the fulvestrant. he changed the fulvestrant as he felt it was starting to fail. 

I just feel completly useless  as to do anything that involves picking up, getting up walking bending etc causes so much pain I am wondeering if my cancer is spreading. My oncologist would of had the results of  last MRI on my spine three weeks ago today Tuesday but has not advised me in any way. I feel he is not bothered and is just been collecting money from the insurance company while he could before either they stopped paying or the cancer beat them to it.

Is it worthwile taking the cbd for the pain and if so is it better to have the actual drops or the tablets. I live alone as I lost my husband to Mesothelioma in 2015 one son and his family live in Portsmouth and my other son has his own house as he has been through a messy divorce and I know I put on him but each day he visits and talks to me from outside currenlty and then goes hope I just cry for ages then I feel worse and stupid.