I am so sorry to hear about your diagnosis. I am currently waiting biopsy results for NPC and would like to hear about your journey so far. This is an incredibly difficult time to receive such news and I hope your are managing ok. Best wishes Deborah
Hi Deborah how are you. Thanks for reading my post. I wish you only good news ahead. I started out with cold and flu symptoms that originally went away with antibiotics. Then a month or so ago I went to see ENT specialist for a biopsy. He couldn't get a biopsy tissue from one side as the nostril was very narrow due to the bone cartilage not being straight. He tried hard under local anesthetiser but could only get dead tissue. I had ct and mri scans but nothing conclusive. Blood tests were normal. I have visited ENT specialists who say I have NPC and oncology specialist who say different. I'm waiting for the operation to clean out my nasel passages and to try and get a biopsy tissue. The ENT specialist wants to clean up all the dead tissue and do a skin graft to repair inside. I gotta say Deborah I feel very down with headaches, mucus discharge and a sore throat and can't wait to get started on the treatments whatever they may be. I feel like I have a hangover everyday. Thanks for listening Deborah.
Thanks so much Lyn. How are you feeling. I hope you get back your feelings soon. How are your eating habits. May I ask how you were diagnosed with npc. Were you told the possible causes. Excuse me for asking so many questions. Lyn please take care and stay strong. Regards Ian.
I had a biopsy done up through my nose and it was very painful, just local anaesthetic. I then waited a week for the results and started chemotherapy 4 days later
I am tired a lot, the fatigue has been difficult. I am beginning to eat more but have a very dry mouth which is helped by a prescribed spray. I have bad neuropathy in my feet, on medication to help. No cause given just 'one of those things '
Hi Lyn, thanks so much for sharing your experience with me. I'm glad you are starting to eat better. Trust you have family and friends around to help you get thru this. I will contact you after I get my biopsy results. I couldn't get the biopsy up through my nose because there was only dead tissue. Therefore I was put to sleep and a lot of dead tissue was cleaned away before we could get some suitable tissue for the biopsy. Lyn take care and chat soon. Regards Ian.
Hi Lyn how are. Trust your feeling better and you are eating and living better. I'm thinking of your discomfort and hope it gets better soon. Regards ian
Hi Lyn. I got the biopsy back and it was inconclusive. They now believe it could be lymphoma so I need to go for bone marrow extraction to confirm. It's a process that we must go thru. Fingers crossed.
Hi Lyn trust all is good with you. Stay healthy now. I have sent the biopsy tissue to another hospital for a second opinion. Another week or so. I have been advised to have a body fluids extraction. I will wait till after the second biopsy comes back. Being in limbo is tough right. Since I had the biopsy surgery and cleaning up of the dead tissue up behind my nose I feel better and not a lot of thick green yellow snott. Excuse the expression. Time will tell. You take care Lyn and thanks for listening. Get well soon.
Hi Lyn how are you. I hope your on the mend and your discomfort is improving. I got the 2nd biopsy results and it ruled out lymphoma which is good. I will go back to see the specialist on Tuesday. I am getting there. You take care and stay healthy. Regards Ian.
Hi Lyn how are you. I hope your on the mend and your discomfort is improving. I got the 2nd biopsy results and it ruled out lymphoma which is good. I will go back to see the specialist on Tuesday. I am getting there. You take care and stay healthy. Regards Ian.
