Anastrazole side effects

I've just been told I will be taking Anastrazole hormone drug for 5 years. Has anyone on here had side effects from this drug? I am still to have radiotherapy for 3 weeks starting on 18th May, but the drugs will start now. I am a bit confused as reading about the oestrogen suppressant drug I understand it is for HER2 pos and I am HER2 neg? Will ask my GP although prescription is coming from Oncology dept at Hospital, 
Not sure if I can speak to anyone there.

Silver 

  • Hi, I've just started on Anastrazole so Side effects still to be seen. If you have bone pain I would definitely call your GP, there is a post on my thread where a nurse is taking a low dose of pain killer at night to help with bone pain from Anastrazole. My GP calls me on the phone to prevent me going to the surgery during Covid.  You are just as important. Oncologists have given me a less than 5% chance of cancer returning after I had 3 rounds of chemo, but I still have 3 weeks of radiotherapy to come. I am feeling so much more happy and positive now my treatment is coming to an end, I was diagnosed in October last year and the surgery and treatment has seemed endless! 

    Silver 

  • Hi again, 

    I shall look for that Allred score amongst my mounds of paperwork. I've tried to find out as much as I can about my treatment and diagnosis but there is so much to learn and with telephone consultations it's easy to forget to ask a question, especially with the oncologists, my GP is lovely though and has always phoned me if I have any worries. 
    I'm glad you said about the Radiotherapy being clean. I have had my planning at the hospital. We were queuing outside and temperature taken on the way in and everyone masked. I just saw radiotherapist and 2 nurses so they kept me isolated , but there were maybe 20 masked people going in for treatment. 

    I was told just to use E45 cream, but if I have any problems with sore skin they would prescribe a cream, but I will ask my GP beforehand. I've been using that and Aloe Vera on my masectomy scar. It's my right breast but still had to hold my breath during planning with the contrast substance.

    What is Predict, is it the % of the the cancer returning? 
    also did you have chemo? 6 weeks after chemo my hair is just fluff on top of my head and no real hair growing back and I've read that Anastrazole can cause hair thinning! I worry about my baldness a lot, I might be vain be I used to like my hair! 
    Silver 

     

     

  • Good morning,

    After having no soreness, a little redness about two weeks after my radiotherapy, and compliments about my skin from the nurses I am a huge fan of Epimax.  I like the fact that it can be used as a soap substitute and I washed my radiotherapy area, patted dry, and then smoothed on in the morning.   After the treatment, I found it was really important when I got home which took about an hour. By the way, I still use Epimax as a body cream.   I finished my radiotherapy August '19 and buy Epimax now on Amazon the 500ml size.  

    Predict is used by NHS Oncologists with their patients to show the risk of the return of breast cancer.  You type in your age when diagnosed, how it was found such as screening, size of the tumour, lymph nodes involved, oestrogen positive/negative, HER2 negative/positive.  Then it gives in easy to read tables for chosen treatment percentages of it returning over 5, 10, 15 years.  As somebody who cares about people, together with having a little knowledge about these things, I would really ask you to consider the Bisphosphonate treatment if offered by your treatment team.   

    Certainly, I haven't noticed any hair thinning nor on any of the ladies in my Breast Cancer Support Group.    But, again, it affects everybody differently.  Now you'll laugh but I work with many African nurses who wear wigs and they look stunning.  My daughter tells me that wigs/hairpieces/extensions just the norm nowadays - this is confirmed by all the young nurses!   So....I bought a hairpiece, wore it to work and felt fabulous.  I have been looking at wigs and I think I am going to spring for one.  Let's face it the beautiful Joan Collins has been wearing them forever!

    Trisha x

     

  • Hello,

    Thank you, you have been very helpful. I shall def ask my GP about the Epimax before my treatment begins. I just did the Predict table and my percentages of surviving 5 years are high, sincerley hope so after going through all this. I already have a wig that I feel confident in, if I do go out anywhere, although not much chance of that these days and I have hats and scarves. I was given £120 from the NHS towards my wig. I went to a specialist wig shop and they fit and style for you. I had Bisphosphonates during my chemo and I have a session booked already for October.

    Best wishes

    Silver

     

  • Hi Silver,

    Hope all goes well with your radiotherapy treatment. I also had 3 weeks of radiotherapy with no side effects at all! X

     

  • Thank you, that's encouraging!

    Silver

  • Here if you need xx take care