Throat cancer

Hello everyone I have throat and neck cancer. Had 2 major operations August and September 2019 to try and remove my cancers. After my radiotherapy in December they said my test was clear in my throat and neck. I cant eat and swollow properly but it could have been so much worse. but I do need a MRI to see if its spread to my lungs. So because of everything thats happened im still waiting for my MRI. I no its a bad time for everyone, but I am getting so stressed out and my mood swings are so bad. If its in my lungs I want to no, I need to make plans and put in place things for my children. I cant speak to my children about it, I just feel so alone. 

 

  • Hi Evelyn1965,

    Welcome to Cancer Chat. I'm sorry to read about your worries at the moment, although glad to hear you got a clear result after radiotherapy.

    I can certainly imagine how unsettling and worrying it must be with everything that's going on at the moment. I'm not sure if you have an appointment for the MRI yet - if not I hope you can get one soon, and do check in with the hospital if you don't hear anything within the expected timeframe.

    If you'd like to talk anything through with our nurses at any point, which may be helpful, then you can reach them on 0808 800 4040 - Monday-Friday, 9-5.

    Do try to speak to others around you if you can as it's important to not go it alone and to get support where possible. If you feel you can't, please know we're always here for support on this forum, and it's a safe space to write down any thoughts or worries - and it's a very understanding community of people.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Evelyn well first of all congratulations on getting through the radiotherapy and you have a clear test in your throat and neck. Why did they say you needed a MRI SCAN, they could have done a CAT scan with contrast, which is a much quicker scan and it shows up lung cancer. Their is less of a waiting list for a CT scan the mind boggles. Unless you have had some sort of strange cancers we don't know about. Ok with a MRI SCAN ITs slightly better than a CT scan I think Ct scan is 3D where a mri is 4d overall I don't think there's much in it to be honest The most reliable scan of all which is mega expensive is a pet scan your given a smal infection of radiation no more than you would get from a scan. You wait awhile almost a hour the scan it's self takes 40 mins if that then home you go. The beauty of a pet scan in the injection with the radiation is a surgery water now cancer can not live without suger the suger is put in to stick onto any cancers that maybe there in the lungs the radiation is then attracted to the solution and it glows. It really is the most accurate form of scanning it glows where it can not actually be seen by the human eyes. Well it ok me telling you the best scan etc. But one of them aren't any good if they have not actually not done any. So I am going to dig into your mind and ask you did he say what the chances are it already as gone into the lung. 50/50 80/20 or was it a very slim chances. I do ask because my oncologist orders a scan that's just under the nose getting my thyroid glands all the way to my knees so anything from

    just under the nose thyroid glands every bit of my lungs my stomach liver and kidneys are all scanned in one go. So logic tells me if it was thought to be in the lungs at the timr your scan would have covered your lungs whilst they where looking at the thyroid and throat,it seem strange not to have scanned the lungs if he thought there was a slight possibility it had invaded the lungs. So Evelyn what do you personally think about it being in the lungs. You will probably say something like how the hell do I know. No you don't for sure so sit back and try to stop worrying and see how you actually feel or what your gut instincts tell you. I have asked a few of my cancer friends to take themselves off away from everyone they know. Go for a coffee where no one knows you try to get a 2 seater table so people don't ask to keep sitting near you if someone tries to strike up a conversation with you,just say sorry I would like to have a chat but another time perhaps. I am stuck on something I need to get finished tonight for work. I swear to god I always get one who must follow me around,they still push and ask you maybe they could help maybe you're in the same type of job. Just say possibly honest to god this is what I do I will say are you into quantum physics then. I have never yet had someone say yes. You then say oh well never mind they soon look for someone else to talk too. I have said assorts like that to stop people wanting to make conversation with my. I have said I am a biochemist, other times I have said things like I must be going home soon I can afford to be late. They then say why have you got a party of something I have just said stuff like no I have to get back to prison it's my first day realise as I am going for my second parole hearing I committed murder you see. I bet you think I am a right nutter. I am not actually I am far from it but silly things like that used to make me laugh my friends used to say I am crackers. All I said was who have I armed no one and for awhile it took my mind of the cancer. People who don't or never have had cancer really do not understand the worrying your doing right now. You go to bed worried you wake up worried and when people say come on pull yourself together and stop worrying I want to swing for those people. Another one I hate oh I know exactly how your feeling because I was devastated when poor misty got cancer I had, had her got almost 14 years and they are taking about a cat or a dog. Jesus **** I have had dogs and lost them and been upset but sorry I couldn't compare the lose of my dog with a human life. No sorry they do not know what it's like, I probably haven't answered your question but I hope I gave you something to laugh with me about. We don't seem to have much to laugh at really do we. I do know a lot of cancer treatments have been stopped. I have heard people moaning how can they put a virus before cancer. Did you have any chemotherapy at all. I know the treatments are and have been keeping me alive I did tell you I havr metststic lung cancer didn't I would forget my head if it's not tied on. Right where was I oh I was saying I had heard a lot of treatments have been stopped, I have already had a phone call asking me not to attend my next oncology appointment on the 12th of May I will receive a telephone consultation. So I did say I am due to have a scan prior to my appointment and will get the results at my appointment. She did say poor girl if your due to have a scan I think you will get one as normal. So me trying not to upset her I said we might get one how can a oncologist give me a up to date prognosis without a scan she did say I really am sorry but that's all I know I have to phone people not to come for there appointment. I also really really feel for all those oncologist who have had to have meeting upon metting trying to work out the best thing to do if they treat someone with chemotherapy. The second that person leaves the oncologist department those oncologist might have given that person a death sentence by leaving the body wide open to catching a infection but someone walking by them with covid 19 there immune system is none existent chemotherapy doesn't just kill the bad cancer in you it also kills all the good in you to it's a poison. Immunotherapys strips away your immune systems. Everything does those oncologist have been put in such a horrible situation. I think they have had to go with no treatment to hopefully prevent more loses in the long run. Although I know not having treatment this time it's definitely going to cause my death yet I still think the oncologist have made the correct decision on the whole. Sometimes losses have to be made to prevent bigger death rates it is what it is. We can't change it. Anyhow Evelyn very nice to have met you and if you want a laugh just send me a message. I know what I did mean to say yes I can laugh about some scenarios I have been in and at what I have said however I do have a extremely honest and serious side to me as well when I asked you te get away on your own for a few hours to see what you feel about if you have or have not got lung cancer. I was going to ask you if you think yes.could you tell me why and what affects your having if any. A couple of things you can not put are doctors names or which heal authority you are taking about. It will be taken out by the moderators. Just thought I would tell you up front