My close friend is on pembrolizumab for the last 18 months and has had 25 treatments. She is 63 Yrs old. All went well until she got the following symptoms. The skin on her feet and fingers are dying and layers of skin are coming off leaving her feet raw and extremely painful. Some of her nails are gone black and very distorted. She was given steroid ointment , Dipro Salic,betamethasone, dermovate cream, paraffin gel. She was take taken off the treatment for the second time and given the above treatment by 3 different dermatologists who by the way have never seen these symptoms before . She went back onto the treatment but after a few weeks , the symptoms have come back with a vengeance. She can hardly walk with the pain and has to take painkiller continually. She is back off the treatment which is so disappointing for her. Is there any global forum where there might be more people with her symptoms that she could speak with?
