Sorry to hear your husband is struggling. I finished FLOT chemo for gastric cancer last March and it did take a while for me to be able to taste food again but it does get better. Chemo is accumulative so it can get harder as it goes on, the best thing to do would be to speak to his oncologist and nurse and make sure he has all the right medications. Also look at the oesophageal patients association website they have lots of recipes to help build him up. They also have local support groups so you might be able to attend and meet up with others who've been through it. I recently attended my first meeting as I didn't know about them and I wish I'd have known a year ago, it was very useful, they have a nurse and dietician attending as well as other patients and carers to give lots of advice. 
 

wishing you both all the best x

Thank you, he's not on any medication at the moment. I'll look into the website to see if we have a support group in our area. X

Hi, thank you for the advice yesterday, we went onto the website and have found some really useful information.

We've got a wedge cushion coming, which hopefully will help him get the right angle to sleep at.

Hope everything goes well for you.

Best wishes x

I was on EOX which is similar for the same condition and know that some of the side effects can linger for months.

I was lucky and didn't need it but the NHS Cancer Centre I was under has a Cancer Rehabilitation Service which is offered to patients in your husband's situation. I'd give you their website but the forum rules won't allow that. 

Google NHS Cancer Rehabilitation plus the name of your town or area and you should find details of a service. Failing that, contact your local MacMillans or Maggies (or look on their website) and they should be able to point you in the right direction. 

Good luck

Dave

Thanks Dave

Have been reading your posts and they are very helpful. 
 

I am just starting this journey today with chemo followed by an operation.

Had breast cancer twice before, but doesn't appear to be connected - however onwards and upwards.

Corrinesue

Thanks Dave,

Its helpful to know how other people have coped with the same regime and theres been so much help & tips we've found on these forums.

Stories like yours are so inspiring and its good to know that there is light at the end of the tunnel.

Best wishes 

Hi Corrinesue,

Thanks - I received so much support and pragmatic advice on here when I was first dagnosed that it only seems fair to give the same back in return :)

Have you had the results of any biopsies back? I'm no expert but I know that there are observable microscopic differences between different cancers which show where the prime is located. Years ago my Mum had bowel cancer followed a few years later by breast cancer - her biopsies showed they each had different origins. 

The fact that your condition is operable is encouraging, I hope everything goes well for you this time around.

Best wishes

Dave

Hi

im so glad my post gave you a little help, hope things start to improve soon. I had the wedge and it helped but decided to invest in an adjustable bed in the end, I plan on being here long enough to get my money's worth :D

xx

Hi Dave, could we ask you a couple of questions please?

At the end of your chemo had you lost much weight and how was your appetite?

Are you still following the "eat little and often" recommended diet?

Struggling at the moment to find anything that tastes half decent and doesn't sit too heavy.

Thank you 

Daisy-May