Hi all, I am devastated trying to put my head up, never thought my life would be on the line 1 Yr ago.
So, a Yr ago I discover a lump on my right side, from the g. P to the confirmation it took 1 week, I was very positive because it was stage 1, I asked for a double mastectomy but they said the best was chemotherapy FEC T because that would shrink the tumor and the lymphnodes, guess what, middle of treatment I start to feel that something was wrong, my breast double the size and it change colour, call my breast nurse, and I was seen by the acute team, nothing was done only blood test, but they didn't even checked my ca 15/3 or done a scan, only offer morphine, (I didn't need morphine, I wasn't in pain), I said I don't need it, need a scan, again because was seeing my surgeon for my surgery ( not mastectomy) in a month time, nothing was done and I was send home. I complain so many times, , the end result was when my surgeon saw me, enter in panic mode, and a scan, and my tumor doubled the size, so the plan was a mastectomy urgent, and fingers crossed it didn't spread. So mastectomy done, recover of it, and no radiotherapy, but again chemotherapy carboplatin to prevent it coming back, and kill any cells that had escape, Wrong.., middle of carboplatin, felt some pain the the scar zone, and this time I asked for a ct scan, and I was not taking a no, so guess what, I was right, it came back, so not a change of radiotherapy, and me and my partner felt they gave me a death sentence , PET scan done what not only have 2 nodes on my chest wall, 16mm, but also 1 on my right lung, again my oncologist said I was terminal, and referred me to the palliative team, I am stubborn, I asked for second opinion, and also asked second opinion, in my country, I won't give up, so my cancer is estrogen positive, and it's also mix with triple negative, I know it's rare, invasive and aggressive, but so am i ️, so the plan at moment is letrozole, Palbociclib zoladex, and to do my bone strength.
Is anyone in this situation, anyone on this treatment? How bad it is? They scared me about destroying complete your immune system...
I am also so afraid, not having a support group near its hard. Even family friends are superstars.
