Chronic myeloid leukaemia

Hello all,

I am Sophie, 28 years old and a mother to 4 children age 9, 6, 5 and 3. 

In November I was diagnosed with CML - chronic myeloid leukeamia. It's strange really because I'd always thought of myself as healthy and being young you just never thing something like this is going to happen to you! 

I am looking to talk to people who are in the same boat or similar to compare and talk about the struggles faced with an incurable type of cancer.

Thank you x

Parents
  • Hello

    i am NOW 59 

    i was diagnosed in April 2011 and like you it was a massive kick in the wotsits having been fit and well my symptoms were aching hands, pain under my ribs on the left side and running out of energy I had been losing weight but I thought it was because of the training I was doing at the time. I also thought I was getting arthritis in my hands. After the blood test I was called into the Doctors later the same day when I was given the news. The first 9 months they took bone marrow out of my pelvis (very odd experience) during and after I've been on 400Mg Imatinb since 

    I have been fine since,  so much so that the Doctors are thinking I can go onto a reduced dose of 200Mg

Reply
  • Hello

    i am NOW 59 

    i was diagnosed in April 2011 and like you it was a massive kick in the wotsits having been fit and well my symptoms were aching hands, pain under my ribs on the left side and running out of energy I had been losing weight but I thought it was because of the training I was doing at the time. I also thought I was getting arthritis in my hands. After the blood test I was called into the Doctors later the same day when I was given the news. The first 9 months they took bone marrow out of my pelvis (very odd experience) during and after I've been on 400Mg Imatinb since 

    I have been fine since,  so much so that the Doctors are thinking I can go onto a reduced dose of 200Mg

Children
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