I lost my mum to kidney cancer, clear cell renal cancer that had spread, apparently her kidney tumour was 18 cm and unfortunately it had already spread to her bones and she died 10weeks after diagnosis. I myself was diagnosed with kidney cancer on 02/09/2019 after losing almost 2 stone in a matter of months. My symptoms pointed to problems with my bowels, however a CT scan revealed a 12cm cancerous tumour in my left kidney. It’s at stage 3/4 I had 2 sessions of immunotherapy that didn’t agree with me and I have been admitted to hospital since diagnosed 4 times. Infection after infection plus have had 9 blood transfusions! My treatment has now changed to targeted chemotherapy. I take a 40mg tablet at the same time every day.
l asked my consultant about the long term prognosis and he said it may not be curable but can be managed for years. The prospect of never being cancer free and having to take medication that makes me feel tired and a bit off every single day is daunting there is no light at the end of the tunnel. Does anyone know if just chemotherapy tablets can actually shrink a tumour? Also how long can it be controlled? I’m 47.