The waiting game for a loving family with a new diagnosis

5 Weeks ago when the "virus" we thought my husband had for a week worsened and he struggled to get words out along with many other symptoms, he agreed to go to the Doctor who referred him to the TIA unit at our local hospital. He was seen the next day and was swiftly moved on to a ward for further investigation. He had a brain tumour and was referred to another hospital that is 2 hours away from us. He came home from hospital after 3 days , a Monday . The next hospital rang on the Tuesday with an oupatients appointment with the Consultant for the Friday , the following Friday the Tumour was removed. Discharged from that hospital on the Saturday evening! Very quick and a little scary as his drain was removed only an hour and a half before. The following Thursday  staples out and the Friday back for the next Consultation. All the tumour has been removed, great news. Sadly it was a secondary maglignant tumour. The biopsy suggesting the primary is a carcinoid from the lung and have been transferred back to our local hospital. This last week feels like the longest wait in history for the next appointment . After my husband ,children and myself spending the first 2 weeks in shock, emotions are off the scale for us all apart from the person who is going through this ! My husband who has resigned himself to take 1 step at a time now .I do seem rather selfish posting this , I am sorry but just needed an outlet . Thank you x

  • I am sorry to hear about the trauma for your husband and family. Sending you healing wishes for the best possible outcome. I am going through chemotherapy for breast cancer, so different to your situation, but find it helps to post on here. 
    Silver x 

  • Hello,

              l am so very sorry to hear of the distress you are facing.No you are not being selfish, and please never, ever think that. There is never a cancer patient, ie the one that is diagnosed, but rather cancer patients, being the partners and family.They all suffer in different ways,but the pain is no less in them all.

                                                   Please remember you are in as much need of help and support as your husband and never feel ashamed in seeking it from all the support groups in your area. Whilst he will be given it by the health professionals giving him treatment, it can be important that you and your worries and feelings are not overlooked

                                                         Be kind to yourself and l hope your journey is not too painful and that you manage to cope with the issues and challenges it throws your way, and send you my very best Wishes,

                        David