I'm so sorry to hear that Lila29 and can imagine how devastating it must have been to receive that news after everything you've already been through.  I hope you get good results from the radiotherapy.  I receive the results from my post-chemo scan next week and have the same feeling you did.  Every time the doctors have said they're not expecting to find anything, they have and my prognosis gets worse every time.  We just have to stay positive and keep believing that the next treatment will work.

Sending you lots of positive vibes x

Oh I'm sorry, its rubbish to go through the treatment and then get bad news. The radiotherapy may just work, so always be hopeful. I am about to start chemo at the end of Jan, I'm 6 weeks post op masectomy and dreading it. Fingers crossed for you.

Silver 

it's just awful to constantly feel like someone is pulling the rug from under you! if I hear the word rare one more time I'm going to scream. It's rare you've got this cancer at your age, it's rare the chemo hasn't worked, it's rare you'll get these side effects and then end up with all of them. I am going to be positive again but from tomorrow. Today I'm bitter and angry. 

Good luck with your treatment I've got everything crossed for you xx

Thank you Lila29.  I have everything crossed for you too. Completely agree... it's okay to allow yourself down days/angry days... think I cried solid for two days after my last bit of bad news and then got up & faced it head-on again.  It's an emotional rollercoaster.

Lila,

Oh b*gger - that’s the last thing you want to hear. Life just isn’t fair and cancer is so random in who it affects. 

You’re bound to feel angry, disappointed, let down and gutted after receiving that sort of news. Find some way of letting it all out - primal screaming works for some people.

I can tell that you won’t give up - so good luck with the radio therapy.

Best wishes

Dave

It really wasn't but thank you so much for you're support I honestly don't know what I would do without this forum! 

Hey, I hope you're appointment goes ok. What you need to try and focus on is the next option. There's no point in me saying be positive because I find that so toxic. You need to feel what you feel and then focus on the next thing. Since this post I've had 20 sessions of radiotherapy, 6 more rounds of chemo and a stem cell transplant. It was incredibly difficult but I am now in complete metabolic remission. Xx

Hey, thank you for giving me some hope. i'm so pleased to hear that things are going the right way for you after all you have been through. such good news, and coming through all of the treatment., you've had so much of it.  

They are taking me in for surgery on Tuesday, I wasnt expect it so soon but im pleased it's happening, and then the anxious wait for the results 2 to 3 weeks after. going for consults after scans or 'whats next meetings' is so difficult as anyone going through this knows. You want hope and somthing positive to come from it. no more bad news :( 

I'm 47, I live alone with my dog and dont have family, i've had so much negative things happen in my life the past 4 years from divorce to this. i've sturggled so much to stay positive and you have just given me some hope, so thank you.