Hi Bunty99,

I'm sorry to read about the problems you've been experiencing recently. I can imagine this is very unsettling.

Your doctor or medical team will be best placed to advise about next steps and what might be possible with regard to ongoing treatment.

However if anyone here has similar experience to share then hopefully they'll be along soon - my reply here will boost your post so a few more people should see it.

Wishing you all the best,

Ben
Cancer Chat Moderator

Hi

my mum is currently on H&P every 3 weeks. Recently she has started having severe dizzy heads, when she goes to stand or walk she is nearly taking off across the room or falling back down. I am so scared at the thought of what it could be 

I would advise her to get her heart checked out - I've had a cardiac mri since my original post and my heart has been permanently damaged by the chemo/Herceptin - it's now scarred and the function unlikely to recover. If it is her heart hopefully she can have a break from the treatment or get medication to alleviate the effects before it gets any worse 

x

Hi 

thanks for this. What kind of symptoms did you have? My mum has a regular echocardiogram every 3 months with one due soon. All her obs etc where good the last day she had them checked. I am panicking so much 

thanks

x

Hi 

I had regular ECGs too.  Started off with 'fluttering' feeling in my chest, then light headed/dizzy spells, over time started getting chest pains which got stronger and lasted longer with pounding feeling in my chest. I could feel my heart beating erratically. I ended up nearly passing out.. sudden, strong dizziness which made me drop to my knees. It's now over 4 months since my last Herceptin and I'm on Ramipril and beta blockers - I still get chest pain and palpitations sporadically but I guess this is my new normal..just a thought but your mum's dizziness could maybe be due to low blood pressure. Has she had it checked recently? I had that when I was on chemo - was light headed and dizzy. I hope she gets it sorted, I know it's a horrible feeling. 
x

Hi Bunty I have been taken off herceptin also, I had 9 dozes and it's damaged my heart. This was my second treatment for breast cancer so I had 12 dozes of herceptin 5yr ago and had no problems then. However this time it has caused problems with my heart. I am now on 3 different pills to hopefully repair the damagr to my heart. However some of the pills can damage my kidneys so it's really a catch 22 situation, but I'm doing ok for moment. Hope you recover and stay safe.