I first posted in February when I gave a background to my diagnosis and experience with MF.

Unfortunately things have worsened these past months.  My MF fully covers my body and the redness and poor, scaly skin condition is easy to see.  I recently had another round of PUVA light treatment. As per usual (for me at least) I responded extremely well with a change in the condition noticeable after the first, 20 second, session!  Amazing. However, I relapsed only 8 weeks after completing my treatment.

Those having PUVA will be aware that you can only 'enter the light box' a limited number of times in your lifetime - I think it is around 220 times at present. If this number is exceeded then the risk of skin cancers developing is significantly raised. I have had several periods in the light box over the years, it varies each time but typically it is twice per week for two to three months. So you quite quickly eat in to your lfetime allowance.  I think I only have one or two sessions left.

Recently I had a lump develop in my breast. I had to attend the breast clinic at my local hospital.  I had a mamogram and ultrasound and a biopsy taken all in the one afternoon.  Great service! You have to be very aware of lumps with MF as the risk is that the cancer starts to manifest internally rather than on the skin. Fortunately my biopsy was negative.

Meanwhile, I have had to ditch the Aveno for Hydromol as my main source of moisturiser. I use it twice per day, morning and early evening. Using Hydromol is a bit like applying axle grease to the skin as it is very thick. But it really does help. It seems to have reduced the flaky skin to almost zero.  I also bath quite often using ground oats ( about a cupfull in a muslin bag) and a small handful of Hydromol disolved in hot water. These baths also help a lot!

I am now under a new consultant having changed hopsitals due to logistical reasons. My first visit was this week. He was extremely thorough. I sense he is worried about me though. I have been sent for blood tests to examine the state of my liver function. 

I did notice this on the Cancer Research web site....www.cancerresearchuk.org/.../2019-03-22-targeted-lymphoma-drug-gets-green-light-for-nhs-in-england

I'll be asking about this at my next visit!

Good luck to all us MF sufferers!