side effects of verzenio

Hi I have 2 tumours 1 in my spine and the other in my chest bone , I have been on letrzole for 5 yrs up till 2 weeks ago when I was told it is not working anymore so consultant has changed me to verzenios tablets and injections . I take 2 tablets a day and have 1 injection every 4 weeks along side my denusab injection. I can't really say I have lots os side effects but the one I have is so awful. I get terrible cramping in my stomach then either wind or diorahha . I was wondering if any one is on these tablets and suffer with these side efffects. If so have you any way to help my get over this . The cramps are so bad I have even thought about comimg off the tablets .TIa 

  • Welcome to Cancer Chat Northernlass although I'm sorry about the stomach cramping and wind/diarrhoea you're experiencing at the moment. It doesn't sound very nice.

    I've had a look through the forum and found that [@vwills]‍ was put on vernezios back in April to help with their cancer so hopefully they will pop by when they can to offer their support and advice if they had this side effect. 

    Our cancer nurses are available on 0808 800 4040 if you'd like to have a chat with them about this but do be sure to let your team know what's going on as they may be able to give you something to remedy this.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hi I do get very similar side effects with the cramping and diarrhoea . I am on cycle 7 and they have really started to ease. I've been taking a spoonful of peanut butter with each tablet so don't know if it's that which has helped or if it's just coincidence so may be worth a try? My last 2 CT scans have been stable . Some ladies have had their dose reduced so could that be an option for you? Xx

  • Hi thanks for getting back to me saw the nurse yesterday for my denusab and flaxosdene injection . I mentioned to them about it and they saw my consultant who was in clinic and she advised for me to take buscopan . have been taking since yesterday and they seem to have helped so far so good . Seeing Consultant in Dec after another 2 rounds of the injections . hopefully everything will have started to settle down by then . My next ct scan is after 3 cycles of treatment so thinking it will be in Jan. Hopefully the tumour in my chest bone has shrunk back again as it was the only 1 to have grown (only have 2 another 1 in my spine which is the same as it has been for 5 yrs thank god )  It is really nice talking to some one who understands what we are going through my hubby and 2 daughters try to understand but I think only we know as this disease is a very lonely one xxx

  • Fingers crossed the buscopan helps here for any thing else you want to ask. Hubby and my 2 daughters the same but totally agree it's not like talking to someone who's going through it xx