Hi Alex

sorry to read your are finding it difficult to sleep, hardly surprising giving what you are going through. When I was going through my breast cancer treatment last year I remember the sleepless nights, I think everything just got on top of me and I would lie there analysing everything, my head was fit to burst. When dawn broke I would go out for a walk just to get fresh air and try and clear my head. Eventually I got bored of worrying/analysing everything and decided to hit it head on, although I had no control over the clinical side of things (negatives), I could control other aspects of my life (positives) it was then I found a balance which allowed me to relax, sleep then came naturally and I haven’t looked back. I really hope you find what works for you but know you’re not alone, we’re here if you need support x

This is not good for you Alex. I have been having paxi/taxcil but just finished now. It gave me various side effects but not the inability to sleep.

At times I have had numb toes and painful joints, so bad I couldn’t wait for the next dose of pain relief!

i have often got up in the night pacing and make myself hot milk! It’s a childhood think for me , my go to comfort drink. For some reason it seems to help me get back to sleep.

you could try a sleep app it may help.

good luck Alex 

Jane

Thank you for your reply hopefully I will get bored or thinging negative and start thinking positive again then I will be able to sleep it's nice to know that they are other people of there that have been though or going though the same thing xx

I am having paxil/taxcil then just just taxcil week 2 and 3 was you on the same regime. They have told me about the leg pain that I mite get hope it's not to bad 

As you have finished your chemo are having an operation now.

Alex

Hi Alex,

I had 3 sessions 3 weekly of paxitaxcil, carboplatin and avastin. I then had surgery then back to another 3 sessions of chemo. 

The side effects are different each time for me and I would say after the first chemo the pain from my hips to my ankles was horrid! I started taking pain relief as soon as I got home after the 2nd in preparation which helped and has not really effected me since.

aAny side effects I’ve had usually start on day 3 post chemo and because I don’t know what they’re going to be it’s hard to be ready for them.

I've had mouth ulcers so sore I can’t eat, sore throat that I can’t eat or talk! Constipation like I never want to experience ever again !!! And other ailments that are tedious. The tiredness can be over whelming too but you must rest and let your body lead you.

I’m now moving on to just avastin 3 weekly so hopefully it will all be a lot easier.

Hi

Have you tried creating a new routine for yourself before you go to bed. Like a bath with some lavender oil, hot milk etc? I wake up in the middle of the night, i do a thing called a body scan which someone taught me to do which is lying down in bed on your back, take some deep breaths (in for four, hold for 4 , out for four, hold for four) and empty your mind. start at your head and just acknowledge it's there, then your hair, your face, your eyes, and work down each bit of your body all the way to your toes, I fall asleep half way through. Sounds silly but it works for me. 
 

hope you find something that works. 
x

It sounds like you really have been though a tough time with your chemo hope it gets easier for you and it all works out for you Alex

We all have our own journey Alex. I’m good thank  you and always remain positive best wishes.

Hey 

How are you finding Avastin?

Is it showing any positive outcomes? 

Are you finding it privately?

I have just had a quote for my husband stage 4 bowel cancer to have it because not suitable for many other options but hnhs hospital have quoted me £1,250 every 2 weeks.

Seems alot as was expecting it to be administered withhis 2 chemo drugs which are also fortnightly.... was this the case for you?

Hope you are fighting hard and doing well 

Toni x