Thyroid Cancer

Hi

For over 12 months I have been feeling ill, lethargic, aching joints and bones, extreme tiredness and general flu like feeling symptoms.  I kept visiting the Dr and was told I was Vit D and B12 deficent and received tablets and 6 injections to resolve but I still felt ill.  Due to my age the Dr said I could be peri menopausal and prescribed HRT...after 4 months of taking I was still feeling as ill.  Then in Feb of this year i damaged my ankle and I had limited mobility.  Due to the lack of mobility I was using a different mirror (held at a different angle) and noticed a lump near my thyroid.  I visited the DR but as my thyroid function tests were all ok they felt it wouldnt be anything serious but would send details to the hospital who may decide to just watch and see or may request to see me.  The hospital requested an appointment, I was refererred upon examination for an ultrasound, the ultrasound picked up the lump but nothing looked suspicious.  A FNA was requested and results were border line, so out of precaution my right hand side was removed...with the view that it was highly unlikely to be cancer.  The histology proved it was cancer and my left hand side was removed 2nd August.  I will be seeing the Oncologist 19th September to discuss RAI.  I am still feeling really ill, aching, Flu like symptoms and tiredness and lethargy.  I did have pain in my left breast and a lump was detected by mamogram and was then ultrasound I was told it was benign, but I am now worried as no FNA was done.  Is there anything I should be discussing with my oncologist

  • Hi Lisa and welcome to the forum. 

    What a journey you've had this last 12 months. It's no wonder that you're feeling as you are both physically and mentally. 

    I know a number of members here have said that it's helped them to write down a list of questions that thay want to ask or things that they want to make sure they remember to tell their Dr before going to an appointment. I'm sure that you've got questions about the RAI and it certainly won't hurt to ask them about not having had an FNA of your breast lump. 

    However as your appointment with the Oncologist isn't for another 10 days then maybe you could get in touch with your GP to chat about your concerns over the lump. At least that way you'd have those answers sooner.  Alternatively you could give our team of nurses a call. I'm sure that they'd be able to help offer some advice and support. They're available Monday to friday 9am to 5pm on 0808 800 4040 so do give them a call. 

    I hope your appointment goes well. Do keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi

     I’m so sorry you have had such a rough time. I had a similar experience myself so know how that feels.

    I was misdiagnosed for years and suffereres endless tests and treatments for incorrect illnesses. It took them 7 years to diagnose my thyroid cancer and it was only due to me moving house and GP practice when a young GP notices the huge egg like lump in my throat and want me for a scan.

    Anyhow long story short I was diagnosed at 27 years old, had 2 surgeries and radioactive iodine treatment. After that I was put on replacement thyroxine meds for life, had  17 years of oncology check ups and last year was finally discharged and told I am cured.

    I know how worrying a time this is but please don’t stress too much. Even if it took a while to diagnose, Thyroid cancer is very treatable. I hope you can take some comfort from the fact that after my surgeries, I went from waiting months to see if it had spread (convincing myself it had), weiring down wishes for my own funeral and being told I may never have kids to being a healthy 47 year old woman with 2 beautiful daughters.

    My husband (also 47) has terminal oesophageal cancer at the moment and is in the Hospice. It has spread to his spine and other bones and we have been told he only has a couple of months left to live. He is in constant pain and it has made me realise that what he is going through makes thyroid cancer seem like one of the “easier” ones to be unlucky enough to get.

    While I know it certainly won’t seem that way to you and easy for me to say now but I’m sure you will get great care and soon be feeling better. It’s natural to worry about every new lump, bump and ache. I did for years but have relaxed over time.

    I wish you all the best with your treatment and ongoing journey. Make sure you get support from any counselling or alternative therapies you are offered. There was nothing like that for me and it is so lonely and scary when you have no-one to talk to about your concerns. 

    Be kind to yourself and keep me posted on how you get on. I’m sure things have changed a lot in the past 20 years but if you have any questions about my journey that you feel may help just let me know.

    love and hugs x

     

  • Thank you so much, your words do help.  You have been and ares still going through so much yourself.  I see my Oncologist 19th Sept and I will keep you post.

     

    Lots of love

     

    Lisa x

  • Thank you so much for your reply, and I will give one of your nurses a call