I was diagnosed with stage 3b adenocarcinoma in October 2016. The next month I enroled in a immunotherapy clinical trial using pembrolizumab in combination with ramucirumab and had a magnificent response. Pembrolizumab is now available on the NHS, unfortunately, it only works for a minority of patients but worth running it past your oncologist. Best wishes.

Hi thank you for reply I have stage 3a adencocarcinomo and I'm told its non operable at moment as it's in lymph glands is that where u had it  ..I'm told if chemo shrinks it they mite ne able to operate  .. Christina 

Hi Christina, hope you don't mind but I just need to sound off a bit, am feeling so anxious and very very scared.  It helps a little to just put this down and know the other person will understand.  Am still waiting my MRI scan, last time I had one I had a panic attack and they had to get me out!  This time I will be sedated.  My mind is running away with itself thinking about what might happen, I know I shouldn't but I can't stop.  Even a large brandy and a sleeping tablet doesn't work!  Sorry to dump this on you but I know if you need to do the same it's fine with me.  Hope your next chemo goes ok and the side effects won't be as bad as last time.  Thinking of you.  Take care.  Sue

Hi sue you can dump it on me anytime I understand how anxious it can be ..maybe u.you need some medication for anxiety but I I suspose our bodies have enough poison in them with this stupid disease I'm going for reflexology on Tues I've heard it's very good for stress and relaxes you why dont you give it a try sue  I forgot to ask you where you are from or are we allowed to ask that here   sue anytime you need to  chat or get angry I'm here  .I'm the same I get angry and sometimes I just cry..I hope everything goes ok sue    christina

Dear Diney

Please please do not despair, I was diagnosed terminal cancer in lungs and liver last Sept. I am still here, given immunotherapy and lucky I have not had any problems. I I understand 100% how you feel angry and upset, I was devastated, as had no symptoms at all only had bad back. You fought kidney cancer in 2016  and won, and you can fight this too. Please send a message at any time if you wish to talk, it sometimes helps just to tell someone. 

Keep strong

Jenny

Thanks for that, I feel so low at the moment and don't want to keep dumping it on hubby and family.  My Consultant is referring me to the Clinical Psychologist and I need to see the GP in the meantime as the waiting list is long! Hope the reflexology helps you.  Not sure whether I can give any personal information on here but maybe we can find a way round it.  When you think you have no more tears to cry they come out of nowhere, pretty crap isn't it?

Yes it is sue you can dump on me anytime I know how you feel i watched a documentary last week and i heard someone say cancer is a lonely place and i just taught i can relate to that .. its terrible that you have to go on a waiting list  like do they realise how anxious we get waiting on test results  I'm actually suffering with my back last few days I know I have discs out but I'm worried that maybe its spreading  .. oh sue I do hope you get to see someone soon   keep in touch   and as I said I'm here if you need to have a chat or a rant 

Dear Diney,

Know you are scared and terrified. Do not know how you feel with Chemo as never had it, but just think positive, that it is killing the cancer cells, and the treatment will work. A nurse told me you fight cancer with your head, and not to let it get in there. Difficult to do when your scared, but please just keep pushing all those black thoughts down and just believe your on the winning side. Don't forget just how strong you are.

Regards Jen

Thanks jen chemo is hard but at least I know and will be prepared next time and know that it will ease after few days you are right though no matter how sick we are I think we have to be positive  ....